Perception

Our perceptions, the way in which we understand things, shape the things we see. I see myself as a rock and roll type of guy with a punker edge, and carry the attitude through many aspects of my life. As the years have gone by and my hair has thinned I no longer have the beautiful flowing locks of my youth, but in my mind I still see the young man I was, and I have difficulty understanding why he is pushing a walker in his Doc Martens. I suspect most of us have delusions about ourselves to some degree, yet we tend to forget we have even more mistaken impressions about other people.

God is good to me, it shows me my faults by displaying them in other people. I see the behavior and realize it exists within myself, allowing me to forgive myself as human, forgiving the others while still correcting the behavior in myself.

Recently a friend died. I met her forty years ago, and the subtle lessons she taught me back then served me through my life. You know a lesson is valuable when you find yourself sharing it with others, I have shared Connie’s lessons repeatedly, and her most meaningful lesson she repeated from beyond.

Connie and I were seventeen years old, taking “Introduction to Psychology” at New Providence High School. The teacher was Coach Furey, a young teacher with longish hair and a beard. He wanted to be “the cool teacher” and allowed us to have a coffee pot in the room because first period was early even for him. The coffee debacle contained a lesson of its own, as a section of the class became “the coffee klatch;” there were others as the young teacher stumbled through the year, but my favorite was when we discussed dreams.

Connie didn’t walk, for many in the class she was the first experience with a peer in a wheelchair. Someone asked her how she saw herself in dreams, whether in a wheelchair or walking. A level of tension was evident, even forty years ago referring to someone’s abilities was considered taboo.

Connie displayed no discomfort at the questions, answering calmly and honestly. She had never walked, she did not miss walking or picture herself walking. The wheelchair was not part of her any more than our school desks were part of us. Her vision in dreams included the movement she was accustomed to, and on the occasions she saw herself in dreams she was floating, moving without making contact with the ground.

This was a powerful lesson in perception, one that has been borne out by research. People do not miss what they have not experienced, their life is all they know. Ask a twin what it is like to have a twin, and they might ask you what it is like to not have a twin. Some examples of our misconceptions about our own perceptions can be found in the wonderful book by Daniel Gilbert, “Stumbling on Happiness,” and throughout the writings of Oliver Sacks, whose book “Seeing Voices” details his experiences at Gallaudet.

One of the more demonstrative communities to address the issue of insulated perceptions is the Deaf. Suggesting a person suffers from deafness may result in an argument, as he tries to convince you that you suffer from hearing. A growing movement within the community sees deafness as a defining element of belonging to their culture. Other groups, born differently, follow the same logic. This is how God made you, it does not need to be “fixed.”

Reflect upon this. Consider the definition of “normal,” as Merriam Webster states “usual or ordinary : not strange,” and “according with, constituting, or not deviating from a norm, rule, or principle.” Now consider the definition found in Urban Dictionary, “A word made up by this corrupt society so they could single out and attack those who are different.” The Urban Dictionary definition is directly implied by the definition in Merriam Webster, “not strange.” I find some comfort in being called “weird,” which I suppose is weird in itself. Many people wish to be accepted by society, being told they are not normal sets them apart; human beings have a long history of xenophobia, parents have killed children with minor deformities. The stigma of being different can be a life or death matter.

A few weeks ago Connie made a generous donation to my own GoFundMe website, and had written a very touching response to the thank you note I sent to her. A few years ago she had participated in “The Ice Bucket Challenge,” using ice and not water so her power chair would not “short out and blow up” as she put it.

 

 

Connie developed a sore on her leg which became infected, she went to the hospital and had a fatal heart attack the next morning. I found the reactions to Connie’s death mildly disturbing, as people said things such as “Now she is walking” and “she will be perfect.”

Connie was always perfect. It is those of us who judge others by our own standards who are less than perfect. It takes a person like Connie to reveal my own imperfections, as she did so gently, with no malice.

 

 

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Unknown Territory

A dimension not only of sight and sound but of mind

A dimension not only of sight and sound but of mind

 

I have been writing in this blog for almost three years, daily at first, slowing to a more random pace, trying to settle on no less than once a week. Three hundred and eighty articles in and I am on target. I’ve covered topics from Quantum Physics through Astrophysics, Cosmology through the End of the World, Religions, Politics, a little Sex, and a good helping of Music. In short, the things I think about. This last year has been increasingly personal, and this article may wander into the most personal dimension, not the thoughts in my mind but the matrix of my mind itself.

I have always had a strong memory, recalling the quantity and quality of the events I have witnessed with speed and precision. I have been told I possess a keen intellect, absorbing and analyzing information, then communicating said information in easily understandable terms to any audience. I tell you these things because I remember them, not because I am aware of their presence now. I am reticent to comment on the world today, as I am not secure my analysis stands on the same foundations I have relied upon in the past.

Imagine the way you think. The complex layers of a memory, the data from all of your senses wrapped in your intellectual perception connecting every fraction of a second. I have been told a human may only experience one sensation at a time, one sound, smell, touch, emotion. The brain switches between inputs so rapidly it appears all these things are happening simultaneously, yet even more is taking place outside of awareness. We possess filters, our vision shifts our perception of colors to believe light is white; try on some tinted lenses and see for yourself. We can hear a melody through static, separating out what we want to hear; the same can be true with words in a conversation, consider a single political speech as heard by one thousand different voters, each hearing what they want to hear. We have each had enough tactile experience to know physical sensations are relative. Emotions exist in a dimension of their own, no adjectives are adequate. Tuned by all these factors our memories reside not only in the instant they were formed but also in the moment they are recalled. A word describes this, it is originally Sanskrit. The word is māyā (माया), and in a sense we refer to as “poetic” it has multiple meanings, most commonly considered to be “The illusion of reality” in the sense reality is an illusion. It is “that which exists, but is constantly changing and thus is spiritually unreal”, and the “power or the principle that conceals the true character of spiritual reality.”

With this fabulous brain creating reality from our sensory inputs, it can be difficult to determine if one of the inputs is faulty, and often difficult to explain. Verbally explaining a vision issue to an ophthalmologist is near impossible, you don’t speak their language; twice in my life I have had to resort to visual aids, a smear on the lenses of the first, using my hands to represent my eyes to the second, and this because I had diagnosed the problem and needed them to confirm and treat it. They had been pursuing (and ruling out) a different diagnosis, and were not on the path to the problem with my vision. How do you determine if the fault is in your brain? The stimuli has passed through several filters, are you certain the processor is to blame? Are you likely to ever suspect the processor, as it creates the filters and references you use to judge reality?

So I find myself today. I know one of the functions which takes place in my brain is malfunctioning. I don’t know if this is affecting other functions, or if those are malfunctioning on their own, or if everything is fine outside of one malfunctioning segment.

I have always been an emotional person. I feel deeply, I am passionate both verbally and physically. When I got out of the hospital last month, once I started remembering things, I found myself surrounded by reminders of Emma. My grief was overwhelming, I cried so much I would leave the room so I could scream in the pain which was tearing me to shreds. Then I stopped. I didn’t feel anything. I felt no passion or desire for Sam, and although I knew I should have some level of emotion directed towards the woman who leapt from open relationship partner to full time caregiver while waiting for the ambulance, even the apparent emptiness of my soul only troubled me on an intellectual level. Nothing affected me, I used to cry over commercials, dance to rhythms of the road, laugh at inappropriate moments,  and suddenly I was flat.

I do not think it requires a leap of logic to suspect the remainder of your mental facilities when one function of the brain isn’t working properly following a concussion, and I don’t remember much of the week following the accident. This just seems to be a reasonable precaution, along with avoiding heavy machinery.

I am not sure in which way or ways I should approach the question; how to elicit an answer (tests), how to measure and interpret any results. My mind is a carnival, every barking dog and stick of candy floss an important part of the tapestry, which is the gold thread and which the brass ring?

Lacking any formal training, and allowing any lapses in judgement, it appears I will need to reconcile every item I find, taking inventory of what holds me together, should I care for that revealed or not. I should enlist assistance for the task, and a brief perusal of psychiatrists who accept Medicaid produced zero results within the state. I feel rather strongly no shortcuts should be taken, the blossoming questions rise as a cloud from a bonfire off in the field, drifting across the moonlight as it paints the faces awaiting the carnival’s fireworks display.

And I can’t tell if this prose is an elegant indication of wellness, or an abstruse intimation of infirmity.

 

 

I will be waiting a few more weeks for cognitive therapy, it seems odd to me there are so few therapists available, the need appears overwhelming. So many unconscious sufferers wandering aimlessly. I joined Luminosity at the suggestion of my neurosurgeon, at least I will be exercising my neural net, keeping blood and electrons flowing. The other practice I have been applying in trying to find my emotional base has been following “inspirational” web pages, reassuring thoughts and mantras usually presented as memes. The greatest power I realize from these memes is the recognition I am not alone, someone else has produced the same thoughts I am pondering.

 

"Soul Speaking" Inspirational page

Soul Speaking” Inspirational page

 

The eventual remedy lays in memory, remembering who I am, verifying the memory represents reality, and living the life of the man who not only has been this person in the past, but is this person today. Social therapy, spending time with people who know me, can only provide the strength to separate the music from the static, provide reminders of laughter and passions. When I find I can dance to the music I have uncovered, there will be reason to believe I am on the right path toward experiencing passions again. I can acknowledge the possibilities are endless, opening my mind to the breadth of the spectrum, but only one wavelength belongs to me. I think it is just about 400 nano meters.

 

 

It’s a wonderful carnival, I’m staying all night.