World Pride Day

30 June 2019, 8th St at 6th Ave NYC

 

Pride Day became Pride week became Pride month. The culmination of Pride month was the weekend of 29/30 June in New York City. Janice and I arrived Friday and left Monday morning. It was a wonderful weekend in so many ways, the crash of backlash seems so incredibly offensive.

Fifty years ago a group of drag queens and other queers got tired of being abused by the police, so they fought back. The original Pride was days of riots. Today is a celebration, backed by corporate sponsors who occasionally have a horrible history of anti LGBT+ discrimination. The spin off march, Queer Liberation, works to remind everyone that the original Pride was a riot; and has no corporate presence. I really should have gotten up a few hours earlier and gone to that parade, but this was the big fiftieth anniversary of the Stonewall Riots so we wanted to see the main parade.

I am exceptionally grateful that I had the sense not to march in either parade. I’m not sure I could have kept it up. From the very first person to the last there were genuine smiles of joy. Everyone was smiling, there weren’t even any whining children despite many children being present. I had been standing for nine hours before I realized I had been standing for nine hours. Janice was starting to collapse, having been the center of attention on our block for nine hours. This is when we found that we should have stayed on the other side of the street. There were barriers to prevent crossing the street, and we were inside the perimeter of the celebration. When that last smiling marcher passed by around midnight, we were able to try to find our way home.

Fortunately, I remembered enough about New York Subways to avoid the frustration of finding a cab. As we entered the station, some idiot who thought he could take over the world monetary system was trying to use the ticket machine to do and a group of girls in line were fighting, so an exhausted NYPD officer unlocked the doors to get everyone onto the platform (for free!).

The vibe in the air was love, and acceptance. It was not unusual to see (or not) wonderfully sculpted garments that enhanced the beauty of the person adorned. There was a small amount of nudity, most women wore pasties and the majority of men kept their genitals out of view. I dressed properly.

Somehow I forgot sunscreen, I have the most unusual tan lines.

 

Janice, being full of excitement, actually got sunburn on her armpits from waving her arms in the air. Being exceptionally beautiful with rainbow heart pasties, she drew some surprising attention. Gay guys like boobies too, every camera that passed seemed to pause on her. Marchers would stop and cheer her “bravery,” often lifting their shirts to show they were already wearing pasties (or not). And perhaps raising our prestige on the street even higher, a couple of people marching and in cars for organizations made a point of talking to her from the parade, because they were friends involved in the same organizations. We even were noticed by a couple of professional photographers, one producing a story for a European magazine,  another the lovely Dianne Arndt, a New York based international photographer.

 

Courtesy Dianne Arndt

 

Being the fiftieth anniversary of the riots, New York was the center of World Pride Day. There were groups from many countries, but I only saw two Belgian flags (don’t read anything into that, I know plenty of LGBT+ Belgians). As well as other countries, other cities were represented, some just small towns I had never heard of.

 

 

One of the two Belgian Flags I saw in the parade

 

There were the traditional contingents of each variety of the LGBT+ community, and the corporate sponsors ranged from IBM to Fred’s Hardware. There were very few political statements, no matter how you regard LGBT+ folks, we come from every walk of life. The presence of church groups was nice.

Crowd estimates ranged from 800,000 people present to three million visitors to NYC for the purpose of the LGBT+ events.

 

Janice with a fellow “Pasties Pride” spectator

Of course, even after a wonderful weekend surrounded by my peers, we had to return to the real world. We came home, caught up with everyone who couldn’t be there or we had seen. Janice posted the above picture on her Facebook page. In addition to receiving almost a hundred “likes” from our friends, a relative of mine chose the occasion to make a rude remark. It felt weird blocking a relative. I have no idea what it will be like when we visit next so yes, I am appropriately intimidated. What I will not be is ashamed. Should she choose to argue (I have no idea what her problem is, I am loving a woman these days) I do feel better informed about her likely issue. Turns out the word “Homosexual” did not exist in the English Bible until the twentieth century. The word it is translated from is usually translated as “Child molester.” Early Bibles even contained the correct translation, some still do. Then there’s the clear words of Jesus when he tells people to grow, to love everyone, and hate no one.

I thought I understood the prejudice and harassment LGBT+ people live with. I was in that “privileged” group of Bisexuals who “pass” as straight. After all this time, people still don’t get it; what happens in my bedroom is as much of your business as what you do in yours is mine. I “came out” to more people who had simply ignored my previous attempts, and I can only imagine how difficult this must be for someone with insecurities. I’ve had friends cancel engagements, stop talking with me, and in a few cases end our friendships. So much for our enlightened society.

This year, I am Proud. I have a sense of community I have never felt before. People of diverse circumstance and sexuality joined in support of all who stand outside. I also feel a sadness for those who deny love when it doesn’t fit their understanding, I personally cannot see two humans expressing love for each other and not feel joy.

So get out there, straight, gay, or any variation and spread love.

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Surprises and disappointments

It has been an interesting month. Let me supply you with some background.

I am sixty years old. Forty two years ago, at age eighteen, I had my first homosexual experience. A classmate, far more experienced than I. It was the seventies, the cusp of AIDS. He would take the train into Manhattan on the weekends to play in the bath houses.

I was intimate with him a couple of times, and “friendly” with some of my other gay friends. It was odd, in this small group of people who had been friends all their lives, a large number experimented with Homosexuality for a few years, some for life. I am still friends with a few of them.

I went on with life, got married, had kids, left for another woman, and man. My first wife was having an affair and trying to get me to leave, so I did. I moved in with a female coworker, platonic at first, then one night she climbed into my bed. Then her gay male friend climbed into our bed a few days later. Then I met some of her other friends. This may have been the first time I used the term “Bisexual.” My father actually came to our door to tell me to return to my wife. Something like “You can’t have Bisexual orgies the rest of your life, you have children.”

Life went on, I eventually tried to make things work with the wife, but things were working fine with her. I remarried a couple of times but all my wives knew I was Bisexual, even when it did not result in any activity on my part. I was ever so slightly effeminate, perhaps androgynous, and would mention some previous encounter when all the Heterosexuals were talking about theirs. I spoke often about how the Red Cross did not want my blood because I had had sex with a man. I was occasionally flamboyant.

A few years ago, at my fortieth High School reunion, a man walked up to me, a former football player and now retiring as a coach. He saw in his team young people coming to grips with their sexuality. He said he admired how I had been, and considered me to be “the brave one.” I really thought everyone knew I was Bisexual.

Then something happened. I met a woman.

Not just any woman, I met a Bisexual woman. I met a Bisexual activist. Janice is not “in your face” with her sexuality, it is simply a part of her life, like your sexuality is a part of yours.

I felt much more open myself around her. Pride month arrives. I decide to make some public statements, and get a bit flamboyant. I dye my beard in Bi-pride colors, get my fingernails and toenails painted bi-pride colors. I wrote about Pride and posted about our activities on Facebook. Not exactly in your face but vocal. I made friends on Facebook with a couple of Janice’s friends, and spoke more in public groups. In a SpecOps group I am in, there was a discussion about a pride flag being flown at a military memorial. What an interesting place to be lectured about sin.

I noticed there were fewer interactions, I know my ex-partner was saying negative things to people but this was noticeable. My blog has had fewer views, my friends for the most part avoid me, my family has been silent when they are at their best, anti-LGBTQ+ memes were rare, and the occasional comment about loving the sinner but hating the sin. People I have known my entire life, and who must have known I was Bisexual, suddenly backing away. I am the same person today I was last year, forty years ago, and most likely sixty years ago. Nothing changed other than my talking about it, during Pride month.

I find it amazing that in a society devoted to understanding each other, there are people who believe I should be exterminated among my friends and family. When I was seeing Janice, Sam said “You have your family.” She was right, Janice’s friends have overwhelmingly welcomed me.

We’ve had genuinely funny posts that were liked by literally hundreds of our friends, but only by two who were exclusively my friends. I have to believe this is about people distancing themselves from me. I sent emails to most of my closer friends, explaining the situation and offering to talk about any concerns. Two responses, one being “Who didn’t know?” Obviously my friends are from different places in every way, but to have so many back off is unexpected.

I find this sad. One month devoted to LGBTQ+ awareness. Eight percent of the year to recognize what is suspected to be eight percent of the population. All year long we live in a world where Heterosexuality is the “norm.” Art, literature, films, and media portray heterosexuality on a daily basis, yet one example of an alternative relationship and the world calls it “in your face.”

On 30 June there will be an event in Manhattan. The culmination of Pride month takes place at the site it began, Stonewall. In addition to the Pride parade, there will be a Queer liberation march and rally. There is a portion of the community that is suspicious of the corporate sponsorships and such. You may have noticed yourself, all the references to pride in the commercials this month, but a gay character? Never. I am finding myself aligning with that group. I thought the level of acceptance was much higher, should the subject come up everyone gives the politically correct responses, but in real life, it doesn’t work that way.

In many ways, I feel a level of resentment. I had been erased all my life. I thought I was being open and everyone knew who I was, but they just pretended it wasn’t there. Until I made some noise. Then I wasn’t there.

On the third anniversary of my brain injury this year, I promised myself to become more involved in life. That involvement has taken some unusual turns, but each has been revealing. Finding truth is always the mission, regardless of the truth discovered.

 

 

Adjustments

When I met Janice, we were both polyamorous. Now we find ways to justify the  title. Our lives are simple and sweet.

Pride Weekend at The Woods. All we are wearing are our Birkenstocks.

 

And kinky.

We have found what we never expected. Someone to Love, and be Loved by. Sure, we have a physical relationship that would wear out teenagers, but the warmth, comfort, and happiness we gain merely by proximity is typically thought to be once in a lifetime, and we already had our turns. I just couldn’t think about someone being as precious to me as Emma, and although I have said “I love you” to several women since she died, it never took me as long to say it. This is special, I was kind of afraid to say the words because they had meaning I had not thought possible. When Sam saw us together for the first time (only the second time I had seen Janice), she could see the energy between us, and proceeded to bail on our relationship. At another time I would have argued for her to stay, but I couldn’t wait for her to leave.

There are simple things, our shared preferences exceed those of any woman I have ever lived with. Yes, we are living together. We rarely spend a night apart, the location just changes. She can’t leave her home and responsibilities, and there is no way in hell I would ever make New Jersey my state of residence again.

Our shared passions are nearly identical, and have always been compatible. We’re even going to a baseball game together. She loves sports and I can identify the shape of the ball in each of them.

The passions that we share include our very being. We both have carried labels that were inaccurate, and are more free than ever to be proud of who and what we are. Sam had made quite the point of allowing me to explore “that” side of myself, what a joy to be with someone who is that side of myself, and understands it is not a side, it is all of me.

An interesting aspect has been the reactions. I was pretty sure everyone knew I was bisexual, or at least suspected. It wasn’t “important,” we never talked about it; I would just occasionally say something about an encounter that had not been with a woman. Janice was an activist with Queer Nation, she was very publicly out, so I held her hand thinking I was publicly out too. Apparently I have been too subtle all these years. A number of people distanced themselves from me, most were polite (at least they thought they were).

So I find myself coming out at age sixty. For those who chose to not remember the boyfriend I had at 19 (forty years ago), or the bi/poly household of 1985, it didn’t just go away. And I find it disturbing that my “open minded” conservative friends have had so much trouble understanding I have always been bisexual. Being in committed heterosexual relationships did not change that. I did not “pick sides” and choose Hetero, I just had no male lovers. When a heterosexual person is single, does that mean they are Asexual? Interest remains.

I am free. No longer constrained by domineering partners, I get to do what I want. I can go to a nudist camp for the weekend with my lover. We can go to a swinger’s party and share ourselves with like minded consenting adults. We can go to a hole in the wall adult bookstore and get a standing ovation for our performances. I am harming no one. I am measurably healthier since meeting Janice, both mentally and physically.

Janice and I are bisexuals. We are polyamorous in the sense that we have other lovers, but only as a couple; We “play” together. Just in case you were interested. I know the orientation and sexuality of almost everyone I know, why didn’t you know mine? And why do you think my mentioning my sexuality is “shoving in your face,” when I can’t breathe without enduring the countless examples of your sexuality being shoved in my face and being called “normal,” implying I am not. My sexuality remains an insult to this day. How would you feel if the same was true of you?

I am not asking you to understand me. I am asking you to accept me as your equal, treat me with the same respect you did last year.

Love is Love

 

Why Pride

Pink, Purple, and Blue. The Bi Pride colors.

June is Pride Month. I know, you’re proud every month, but June has been set aside for pride with a capital P. This began with Gay Pride, and rather than separate every minority within the “Gay Community” it is now just referred to as Pride. More on those minorities later.

This year marks the fiftieth anniversary of the Pride movement, which traces its beginnings to a bar in New York City called “Stonewall.”

Stonewall had been a hang out for gay men, and was routinely raided by the police. On 28 June 1969, the Queers fought back. For five days there were riots. Gay activism was born. Pride. Gay Pride, Lesbian Pride, Bi Pride, Trans Pride, for most of us, “Pride” is enough.

Some groups want their identity validated as separate among the separate; within my wing, Bisexuals, there are Pansexuals and Omnisexuals (who are the same dog, different collar according to Bisexual Activist Janice Rael) who wish to be identified. Philadelphia has a unique Pride Flag, including a black and a brown stripe, to signify people of color.

The Philadelphia Pride Flag

 

You may ask, “What is there to be proud about?” The answer is “What is there to be ashamed of?” People who are not heteronormative have been erased throughout history. We are proud to be who we are, without public shaming and discrimination. Not to imply those things do not still take place, but it is not as easy to sweep under the rug.

This year Janice and I will be attending a Pride Weekend event at an LGBTQ nudist camp, and we will be attending events in New York City commemorating the fiftieth anniversary of the Stonewall Riots, and NYC Pride Day celebrations featuring Grace Jones. As my over the top display, I have dyed my beard in the Bi Pride colors, pink, purple, and blue. Just wondering how that will grow out.

There are still insular components in the LGBTQ+ community; we visited the “Gayborhood” in Philadelphia and even though we were wearing our Rainbow identifiers, it wasn’t until Janice spoke up and said we were with Philly Bi Visibility that people warmed up to us. We don’t look queer. Very few people do. We look like a hetero couple, outsiders; which should not be. The community should be more accepting of outsiders, on the other hand, look at other communities that were previously oppressed. Trust takes time. As we struggle to include each other, we also guard our definitions of uniqueness.

There are of course incongruities within the pride movement; one of the closed groups I belong to created a new secret group, I’m not sure how you combine being “Here and Queer” and keeping it secret. It displays the lack of acceptance in society, folks are afraid to come out, but they want to be defiant about it. Another is a group of Bisexual swingers we hang out with, most of the men list their orientation as “straight,” because they don’t feel safe coming out within the swing community. I’ve seen plenty of online dating profiles which specify “No Bi Men,” personally I prefer to know someone’s prejudices so I can avoid them.

My former partner, while claiming to be supportive, felt it was appropriate to express how alien to her my orientation was, eventually turning it into one of her reasons for leaving. I was fortunate to find someone like Janice, who is Bi herself, with whom I can be truly accepted and nurtured.

At the hair salon

 

We are proud of our ability to publicly express our sexuality and orientation without fear. Just like you.

 

Politics

It seems that everyone is talking about politics lately. But they’re not. They are talking about their ignorance of intelligent conversation.

I am not taking sides, I rarely do. When a comment is met by a baseless insult, intelligence has left the building. More accurately, intelligence will have left the building when the person making the comment exits, if he stays and argues, it had left earlier.

Insulting the other guy has a rich tradition in politics. Insulting the other guy’s supporters is something newer. For all those who genuinely believe they can judge another person’s intelligence by who they voted for, the folks at Stanford-Binet would love to talk to you. They’ve been measuring intelligence for over one hundred years and still haven’t gotten it quite right. If you believe that you can judge a large portion of the populace by a single political position, you might want to reconsider your insults towards them. “Racist” and “Bigot” just come across a little hypocritical in such a context.

I have routinely partnered with women who have opposite, or at very least not equal, political opinions as my own. I think in the beginning it was purposeful, designed to inhibit an echo chamber. I want someone I care about to tell me when they think I am wrong, and convince me if I am. The results have been hit and miss. Some have agreed with me out of loyalty, some have disagreed out of spite, some have been unable to participate due to lack of communication skills, and some have been invigorating, honestly exchanging ideas.

I have probably mentioned my fourth wife’s habit of physically covering her ears when information opposing her beliefs were spoken, but I’m not sure if I spoke of the result. She would continue with her knowingly baseless ideas, promoting them and attacking those who believed differently. Not everyone has that level of dedication to being wrong. In a certain way I was impressed. Like the way I was impressed by Timothy McVeigh‘s dedication to his cause.

Emma, my third wife, was probably the closest to me politically, but even we differed on Obama, at least during the campaign. I had initially agreed with her assessments, but then started to see the man behind the curtain before the election. It took her another six months.

The woman I am with now, Janice, has that ever so rare perfect balance. No one would ever suspect her of possessing a single conservative bone in her body. Having anything other than the party line as an opinion can make people on either side of the aisle think you are their enemy, or their friend, and be completely wrong. I have always admired her analyses and interpretations, but it was the other day, when she referred to something as “Left wing propaganda” that I knew she was a true free thinker.

I have other friends who will argue the innate “rightness” of any party, but knowing someone who can also point out their own party’s faults is priceless.

We do not live in a binary world. Society is not binary. So why does anyone think governance and politics should be binary? I had really thought 2016 would be the year of the third party. There were, I believe, thirty one parties with candidates for President, yet ninety three percent of the popular vote went to the two major parties. Both parties were filled with people who “held their noses and voted for the party line,” very few chose to vote for someone who was qualified, or perhaps a better wording would be very few chose to vote for someone who was not disqualified. My personal favorite, for whom I voted, was Gary Johnson, the Libertarian. Gary still got only six percent of the popular vote. I did not throw my vote away, I just made a rather meaningless comment on the two party system. Baby steps in an impatient world

Janice brings me great joy in her interpretation of topics, she always has an unusual angle, because she interprets the issues differently. Her mind is fresh and alive with colors I have not seen before. Janice I can talk about political subjects, and walk away with the feeling we both are considering alternative views we haven’t considered before. She is not afraid to say “I haven’t researched that” and come back later having fully researched the issue. I swear if I had people like her in my intelligence wing we could have ended the cold war ten years earlier.

I am a conservative. I used to call myself a Republican, but the party lost sight of its ideals. Janice considers herself a Progressive, having the same views of the Democratic party. Together we find that commonality, the middle ground, where bot side benefit. By the way, NO ONE benefits from screaming and insults.

While we are in many ways unique, I hope this is not one of them. I hope there are couples all over America having civil conversations and working towards solutions..

 

 

 

A most wonderful companion

While I often reference my personal life and the people who pass through it, I would like to jump the shark and speak about a woman I met recently and find myself head over heels in love with. Sounds a bit crazy, but that’s my life.

I am polyamorous. I was in what I thought was a stable relationship, my primary partner had other long term lovers and a number of short term ones after my injury. Three years later I am recovering and start to see people, and my primary (Samantha) melts down, ending our relationship. I was disappointed. Interestingly, the reason for the meltdown of my primary is because she could feel that my new friend (Janice) was in love with me.

At this age we don’t admit it. Even I, who rushes into relationships as a hobby, have slowed down the speed at which a relationship progresses. I’m pretty sure I let Janice say “I love you” first. It only took a few dates. I’m still amazed this is happening.

I never expected to fall in love, yet here I am.

She is, of course, beautiful. As with most women she doesn’t see it, but she glows. Her energy and spirit are expressed physically. And that’s just her body. More on that later.

Her mind is fascinating. I described her the other day as “The most open-minded opinionated person I know.” She does many of the things I do, such as pointing out an opponent’s strongest argument. She recognizes her own party’s propaganda, at times saying “That’s just left wing propaganda.” She sees through the diversions and focuses on reality. She runs a Facebook page devoted to the scientific process.

Her personality is fascinating, and tuned to mine. She is polyamorous, she is bisexual, she is adventurous. She does things I would never have done without her. She has done things I would never do. She has darkness in her past. She has largely recovered from some of the most horrible abuse I have ever heard of. She has lived a life of adversity, and come away with few scars. Her strength shines through illuminating her path.

Some of the scars were deep, and she is disabled. She has had many medical experiences similar to mine. She exists on her Disability payments and rent from a boarder. She cares for the mother of her late husband; and her now twenty one year old daughter, who is breaking into the world. She maintains relationships for decades.

She is an activist, feet on the ground protestor and protector, having provided clinic defense for abortion clinics, helping women safely obtain a legal procedure. She is outspoken in the Bi+ community (Bi+ refers to all bisexual related groups, such as Omni and Pan). She is a leader in the local chapter of Americans United, a group devoted to preserving First Amendment rights.

She is an Atheist. She is the only Atheist who has ever convinced me they knew what they were talking about. She uses the most basic definition of Atheism, and it is a thoughtful process. I get to explain Christianity to her, and she hears a point of view she has not heard before.

About her body. She is properly proportioned, lush and soft. She is eager. She enjoys playing with our boundaries. She is a wonderful lover, expressing herself freely. She makes me feel twenty years younger. She came up with a word to call each other, because our relationship is unusual. She calls me BoyfriendLoverPartner, I call her GirlfriendLoverPartner.

We spend the majority of our time together, her presence is soothing. We share tastes in music, and go to performances frequently. We’ve been to several cultural events together.  We have made friends as a couple, and in fact are going to a party tonight. We are in tune.

We have mini vacations planned, a weekend at a LGBT nudist camp, a weekend in Manhattan for Pride weekend, a weekend in Rehobeth DE for a performance of a drag troupe.

In almost three months we’ve only had one major disagreement, and we worked together to resolve it.

At Magic Gardens for an evening event

 

I’ve been on a roller coaster since Emma died, this feels right on a molecular level. Her family likes me, her pets like me, I fit in.

I know this has become little more than a love letter, Janice has not received all the praise she deserves. She has opened doors that were previously blocked, she has helped redefine a few words for me, she has opened my eyes to things, and I hope I have shown her things she didn’t know.

This is what is happening in my life. I have found a most wonderful companion. I am happy.

Changes

Surprise. Things change.

I was just getting comfortable in this lifestyle to which Sam had introduced me. I had overcome many of my disabilities. I was, by most measures, healed from my TBI.

I was ready to explore polyamory from the driver’s seat. No more hanging back while Sam enjoyed her other relationships, I was ready to start seeing other people myself. As fate would have it, not only was I seeing a side of polyamory I had not before, Sam was as well.

It appears we were approaching polyamory from different points of view. I was taking it literally, “many loves,” while she was taking it as “many lovers.” I wasn’t allowed to have an emotional attachment because she only has physical connections. You know, the stuff monogamous people think polyamorous people do all the time. I am okay with anonymous encounters, but I really got into this to be involved with multiple minds.

The first two women I dated were okay with Sam, but the latest she thoroughly hates. I think it is because she fell in love with me, and Sam was jealous. As time has passed, I found myself loving Janice as well. We click. We have the same desires and attitudes concerning our sexuality. As much as I hate to say it, Sam pushed us together by pushing me away.

Sam went on a tirade, bad mouthing me to anyone who would listen, and some who wouldn’t. She made derogatory remarks about every aspect of my life in every forum she could. I understand jealous rage, I used to feel it. I was fiercely monogamous when I was younger.

What blew me away was when she attacked my morality for loving someone I was intimate with. Most of her attacks were meaningless, obviously designed to be hurtful or annoying, like when she said I was a lousy writer; but when she turned on the way of life she introduced me to I had no desire to pursue a life with her.

It was heartwarming to have people from our online page (which I gracefully exited) approach me as friends. They could see through the bluster of her attacks and saw the angry closet narcissist inside. Our page was supposed to be a drama free zone, accepting everyone. Her shaming of Janice and me was everything our page was supposed to be a shelter from. Janice and I were shocked, the hypocrisy was obvious.

It really got under her skin when I met a new woman for coffee, and spent three hours talking with her. She had settled down and could be civil, but another woman (while she was leaving) was too much for her. It was just coffee! (well, chai) and I was staying out of her way, but again, I failed to match her expectations. One might wonder why she cared, but that would take us down a rabbit hole in search of her true feelings.

Oddly enough, she managed to meet someone who she is now calling the love of her life. He had dumped her a year before she met me, and broken her heart. But he was still on the Swing Lifestyle site and they connected. I sincerely hope they are happy, or at least happy enough to leave me alone.

Closing this relationship has been easier than any of my divorces, I paid Sam for her half of the condo, and will let her store things here until she finds a larger space. In the immediate future, I will have to be home at least every other night to take care of Autumn, once she no longer needs medication every other day I’ll be able to stay away for longer periods.  And the entire meltdown only took about three weeks.

Don’t misunderstand me, polyamory is a beautiful lifestyle. It is essential, as in all relationships, that all participants be on the same page. Janice and I are polyamorous and have every intention of staying that way, she has desires I can never fulfill, and actually gets excited hearing about my dates. I enjoy seeing her satisfied, and we both enjoy pursuits which I will not talk about here, other than to say we do them together, using safe practices.

A number of people have said they are sorry for what I am going through. I am not. I am going through life, and the result of this incident is we are all happier.

Sam managed to move out quickly, so quickly she trashed the condo. She said she would come back and finish up the next week, then cancelled and said it might be a month. In what must have had tongues wagging, Janice came to visit the day Sam left.

So now I return the condo to a presentable state, and finally get to make local friends who can visit. I am, depending on the definition, single again. Janice and I are extremely close and spend most nights at my place, but there is no way we will move in together anytime soon. I will not move to NJ due to their firearms laws, and she is tied to a mortgage and two disabled roommates. Nonetheless, Sam gloated about us moving in together.

Life is good. It could never be perfect, but I am secure, involved with an incredibly complex woman who adores me. The woman I spent three hours with having coffee sees me about once a week. I am becoming involved with some of Janice’s activism, keeping myself active. Janice’s family actually enjoys my presence and is very welcoming. I cannot find anything that isn’t better since, not because, Samantha left.

 

On being Queer

Years ago, when I was in my early fifties, my teenage step son called me a weirdo. He left the room in disgust when I thanked him.

I have always been “different,” even among the different. Even as an outcast the labels never fit.

I moved around a lot as a child, never feeling any place was “home,” it was just where I was. I was always an outsider. As close to having a home I ever have been was my grandparents house in Kingsland, Texas. I could always identify that place as my home, even though I never lived there. They built that place themselves, maintaining a large property that has now been divided, and the house itself has been razed and rebuilt by my cousin, who incorporated many parts of the original in the new building. I am almost certain that my grandmother’s piano is standing on the precise coordinates it has been for the last sixty years.

I am fairly effeminate. I can also produce an authoritative voice and brutal demeanor. When I was working as a digital technician in Philadelphia, some of my clients took to calling me “Dr. House.” It was a title of respect, I cut off explanations that went off-topic, and was generally short with people who wanted to tell me what was wrong with their printer. When I was finished, the printer worked as well as it ever had, and stayed that way for a while; it was unusual to see the same client twice in a month. I dug that moment when they went from being offended to appreciative. At one point I went through a phase of wearing nail polish, a gun metal grey that toner wouldn’t stick to, the only person who complained was my manager, who thought it was too “gay.” I only saw him once a month or less, so I cleaned my nails before going into the office.

I’ve done some unusual things with my appearance, partially because I still don’t like to be recognized but want to be noticed. When I lived in Wildwood, New Jersey for a summer in my twenties, I started wearing exceptionally revealing clothes, it wasn’t the first time people had called me a “faggot.” When they were available in the states, I would smoke Sobranie Cocktails, with their gold filters and pastel papers. In the seventies I had long hair that drew some remarks. In Kindergarten my creativity was mistaken for mental retardation. Gay guys have found me attractive since High School, and one girlfriend used to enjoy walking with me in New Hope Pennsylvania, a fairly gay community, because of the whistles I would receive. I liked it too.

My pastor as a child was exceptionally educated, breaking down scriptures through translation to original Aramaic, saying “but it could also mean this.” He was a questioner, and had found the answers in Christ. He told us to gather all the information we could and make our own decisions. I did. After practicing several religions, I developed a belief system of my own. I refer to it as “Zen Baptist.” In a more literal world it would be called Christian, as in I follow the teachings of Christ. His words as related by the New Testament of the Bible. The Bible is an easy book, if you can read a Stephen King novel you can read the Bible. I sure wish more “Christians” would. In religious discussions I have been called a Fundamentalist, a Muslim, a Bible thumper, and an Atheist. This helped me understand that labels are only meaningful to the labeler, not the labeled.

I even have different physical illnesses. in 1989 I was diagnosed with Multiple Sclerosis (thirty years and still going strong!). In my fifties I was diagnosed with Osteoporosis. Just a few years ago I suffered a Traumatic Brain Injury and the incredibly unusual condition of Superior canal dehiscence. There are people who think the changes in my lifestyle are related to my TBI, which is why I routinely give historical references to demonstrate I have always been this way.

I have had gay relationships, but I am not gay. I have had bisexual relationships (relationships based on a three way exchange of Love and responsibility), but I don’t consider myself bisexual because I don’t seek out men. The best description of me is Queer. I am different. I don’t fit your labels, and your labels might not mean what you think they do.

Romantic connections

My romances have seldom been “normal,” so I have actually given up on “normal” forms of relationships as a goal. Since the TBI, my relationships have been healthier because they are not normal.

Just before the accident Sam and I had decided to live a polyamorous lifestyle. This took a lot of pressure off me during my recovery. I was incapable of intimacy, and she was burning out taking care of me; her other partners were able to give her a break from nursing, as well as satisfy her physical needs. Rather than feeling useless I was happy, knowing she was getting the release she deserved. I “came out” as polyamorous a few months later, but I have only started actively dating over the last few months.

Dating has been fascinating. I am sixty years old, recovering from a TBI, so when a woman finds me interesting it is a boost to my ego, and lately I have found a few who are interested. Where I had no reservations about Sam dating, she has found it is not quite as easy when the shoe is on the other foot. It wasn’t a big deal, but watching her process her thoughts has been fascinating. That said, she did make sure I had condoms with me before my first date, unsure of how she would feel if I used them.

I tried dating a married woman (and yes, she failed to meet the standards of ethical non-monogamy), I was convinced that she was really just a frustrated polyamorist, and even got her to attend a poly meet-up with Sam, but she decided that she was committed to one of her other lovers and polyamory was not the path she wanted to travel. We’re still friends, and will more than likely see each other again (we have common interests), but it would be improper to pursue a romance with her.

Another woman was also experimenting with polyamory. She was recently divorced, and I met her at a poly meet up. We had different goals in relationships, so we parted ways; but again, we’re still friends.

Part of the fascination in dating is the changes to social mores that have taken place.  I met Emma through a personal ad, before the internet. She spent the night on our first date and we moved in together within the week. That has pretty much been my pattern, after Emma died I met women on line but it went the same, with an expectation of sex on the first date. Now that I am polyamorous, which most folks think is a constant orgy, my dates have expressed interest in getting to know me first. But that, it turns out, may just be me. One woman I am currently dating said “I sleep with guys on the first date if it’s just a booty call, but with guys I want to get to know better, I get to know them better first.” This time the ego boost was because she wants to know me better.

Being polyamorous, and operating a polyamorous page on Facebook, I have seen a number of variations in the way partners treat each other. In fact we started our page because we couldn’t deal with the way people behaved on the other pages. All these people celebrating freedom while categorizing and judging everyone else. Many polyamorists are self involved, but Sam and I have a relationship based on communication, and you can’t communicate if you are not honest and open. If more monogamous relationships had the same basis the world would be a better place.

In fact, if more people were open and honest with their spouses there might be fewer poly people. I was attracted to the lifestyle because of the communication required. That was in the early days when I thought everyone believed the same thing; as usual I have been disappointed by reality, poly folks are just as human as mono folks.

I am making every attempt at caution, sometimes I think I may be having too much fun. But these relationships are not throwaways, or one night stands, I’ve met some fascinating people. My latest girlfriend, the one who wanted to get to know me better, has an amazing background in activism, and is not “the girl next door” in any way. New ideas and perspectives are always a turn on.

Many people find relationships difficult after TBI. Mine have been wonderful, even the ones that did not work out. I suspect the difficulty is a result of unrealistic expectations on the part of both partners. I am not an evangelist for polyamory, but I know that the increased communication which is supposed to be a keystone of polyamory (and is in Sam and my case) is fundamental during recovery, impacting every aspect of recovery.

My romantic relationships may be the measure of my recovery. Empathizing with new people, juggling schedules, and new experiences, is a solid road to growth. The fact that my relationship with Sam is stronger than ever leads me to believe we’re doing it right.

 

 

Looking through a Glass Onion

I have been an outsider since birth, so I don’t think about “looking in from the outside” as much as “how much more I can see since I’m not inside”.

I was born in a town which no longer exists. Trinidad Texas is a small town, population 866 in the 2010 census, and if you look at the map of it on google you will see a tiny strip on the island in the lake contained within Trinidad’s border. That strip was the company housing for Texas Power and Light, for which my father was a chemist. The plant shut down and the island was abandoned, when I visited last summer the bridge was blocked. I have memories of living on that island, which I left in 1963.

From there we moved to Dallas, living in an apartment at first. We usually think of apartments as transient quarters, but little five year old me was still an outsider. My father would travel on business, and brought home a toy airplane, the wings came off to expose a battery compartment in the fuselage. I took the toy down to the playground to show it to the other kids, and they smashed it into pieces. Fifty five years later I still recall this as my first exposure to senseless violence.

A year later I was in Kindergarten, where we made pilgrims out of construction paper cut outs. When I cut the face out, I ended inside the point where I had started, and realized I could keep this pattern going. Instead of a circle I cut a spiral, which I thought was pretty cool; I could create three dimensional shapes with it. The teacher was not thrilled with my creativity, and recommended I be tested for mental retardation. What a curse that was; it turned out my IQ was 148, in the range labeled “Genius.” For the remainder of my life I have been told I was not fulfilling my potential.

In second grade, we moved to Walnut Creek, California. This is when I embraced my outsider status. I had received a pair of cowboy boots for Christmas, and when I wore them to school, the other kids made fun of me on the playground. Cowboy boots have heavier soles and pointed toes, unlike the sneakers the other kids were wearing, so I kicked the kids who were laughing at me. School sent me home and my father offered to buy me another pair of shoes, to which I responded “Why? I already have cowboy boots.” The other kids never laughed at me again.

I was about fourteen, with hair longer than traditional, when a couple of street people singled me out, snarling “insults.” I felt sorry for them, and was not offended by being called a girl. It still happens to this day that people see the long hair and assume my sex, when they pay enough attention to notice my beard they are usually embarrassed.

My father’s growth in his corporation meant I moved every couple of years, maintaining the position of “New kid on the block.” I remember the first day of High School, with everyone talking about how long they had known each other. I hadn’t lived in one place long enough to know anyone for more than three years. I’ve kept that up, changing my appearance every year or so. When I was a technician it was always funny to hear about “the last guy,” because often I had been the last guy; they didn’t recognize me.
As I have gotten older, I have occasionally thought about coming inside, being part of the community. I have cultivated my outsider status so long I am beginning to believe it has become a part of me; what began as a lack of understanding is now my definition.

I moved to Elkins Park Pennsylvania with thoughts of disappearing into the community. I even ran for a position on my condominium homeowners board. I was too much of an outsider to be elected, but I may try again once people get to know me. Although based on some recent experiences I am not sure this is a community I wish to be a part of.

We have a couple of local community pages on Facebook, Elkins Park and bordering Jenkintown. Although both pages feature moderators and mission statements that sound wholesome and non-controversial, they are run by humans who are not accustomed to saying what they mean. Or for that matter, knowing what the words they use mean. Nonetheless, I have met some wonderful people on the community page. Yesterday, Sam and I had some unpleasant run ins with our digital neighbors.

First, I was dismayed at a posting asking for a female owned catering service. I commented that discriminatory wording was prohibited under the EEOC, and I hadn’t seen an ad specifying gender since the 60s. I was attacked by several women, who could not grasp the concept of discrimination when applied to men, because they believe masculinity is toxic. The arguments could be compared to stating NAZIs didn’t discriminate against Jews because the Jews were an inferior race. They went on attacking the post for most of the day, I stopped watching after a while. I was accused of gas lighting and deflection, when all I had done was to point out discrimination is discrimination. A few men commented overnight about the level of hate in a community plastered with “Hate has no home here” signs and that some animals were more equal than others, and the moderator interrupted with a reminder to not make personal attacks, then one of the assailants came back saying she didn’t want all men done away with, “Only the narrow minded and nasty/bullying “boys will be boys” ones. Those I will be thrilled to see under a hill.” totally unaware of her own narrow minded bullying.

While that was going on, Sam had commented on a post about the hardships federal workers were facing due to the shutdown. Sam had stated that the hype wasn’t real, no one was being evicted due to the shutdown because they had only missed last Friday’s paycheck, and were well payed with incredible benefits before that. Sam was treated worse than I had been, the name calling started with the second reply to her comment, and went on all day after she left the conversation. The funniest part was when they started calling her a Trump supporter. Sam is a lifelong Democrat who routinely points out Trump’s flaws. Then, one of the moderators threatened to expel Sam from the group due to her viciousness. Sam had simply made a comment, of factual nature, which didn’t fit the rest of the herd’s mindset. The viciousness was from those that attacked her. We don’t share a last name, so I messaged the moderator to ask what Sam had done that was vicious. She said Sam was worse by far, but refused to provide any examples. I’m not certain how one comment can be worse than twenty two attacking replies, but once most people lock their minds on a narrative, nothing else matters. This morning the entire thread had been deleted. Hate has found a home in Elkins Park Pennsylvania.

Mobs are historically scary things. Their reemergence as political tools only makes them scarier. Finding myself living in the midst of these mobs is terrifying. As we watch due process dissolve in our government, what are the chances it will miraculously appear in the mob justice which is becoming so popular these days?

Being an outsider makes me immune to group think. It also makes me an easy target for group hate. I can think of no reason to join the group, security is not worth my freedom.

Challenges of Recovery

The second greatest challenge about recovery is recognizing my limitations. The greatest challenge is recognizing I have limitations.

This was not an issue before the TBI, if something needed to be done I did it. Even in the immediate aftermath of the TBI, I needed a room painted for a tenant and was not happy with the job Sam was doing, so I took over and painted the room with my left hand, the right being immobilized.

Over time I realized that some of my limits were because I never recognized how difficult daily activities were. Driving, which was once as difficult as breathing, involves several portions of the brain simultaneously; I had to recover enough to realize I wasn’t doing it well. Today I limit driving to less than one and a half hours each way, with a rest period of at least as long as the drive once I reach the destination. My first attempt at driving on my own, when I was still in physical therapy, showed me the variables I had not considered. Sure, I could drive ten miles to my therapist, but I could not change a tire when I had a flat.

A good part of my time is spent weighing the possible hazards of any activity. I am not paranoid, but the majority of my various careers revolved on my ability to identify the worst case scenario, I’m good at it. Sam has noticed my energy limits, allowing me to budget my activity. I presently have less than five hours a day in which I can be physically or intellectually active, after which I am physically and intellectually exhausted. Breaking down events, allowing rest or at least inactive periods, allows me to go a full five hours. Pushing myself can bring that to three hours.

This weekend there will be a march in my old town of Princeton, NJ. It appears the town that invented “Jews vs NAZIs Beer Pong” was a natural for a white supremacist group. The Mayor and Police Chief of this Sanctuary town have advised against counter protests, on the surface claiming a public safety issue. Knowing the Mayor and Police Chief, I suspect the reason is to avoid making the national news, which might hurt enrollment at the University.  A friend is involved in the counter-protest.

When I heard of it last night, my first reaction was to ask “When and where?” with every intention of being on the front line. Even when Sam said we had guests expected that evening, I was working out a way to do both, and/or explanations why I couldn’t be home for the guests. In an odd nostalgic way I miss the taste of tear gas.

Another thing that (should) happen with TBI is the ability to slow down. As I slowed down and considered the possibilities, I realized it could easily be more than a five hour trip (one hour each way travel plus three hours on site). Emotions would be high, violence could be expected, and arrest was not out of the question. I am somewhat ashamed to say I would rather be incarcerated in my home town than in another state, but it is true. The Princeton Police have gone out of their way to prove their stupidity several times in the last few years, I do not wish to be their latest example.

When I woke up in the hospital I felt old, now that feeling is more of defeat. I have tried to publicize the counter protest, this article being one of the ways, and I have known that I am not up to front line activism for a couple of years, but there are NAZIs in my old neighborhood! I should be there! Not this time, but if they come to my neighborhood I will be out there in a wheelchair if that is the best I can do, depending on circumstances I may be armed.

Another challenge of recovery is accepting my current capabilities. I don’t like it, and see a couple of therapists and a support group to try to deal with it. Fortunately (?) I am actually old, turning sixty last November, and have had Multiple Sclerosis for thirty of those years; I would have become more cautious even without the TBI (maybe). Part of accepting change is recognizing how powerless we are to stop it.

There are many challenges on the road to recovery of TBI, the majority of which are mental. Unfortunately, following TBI mental faculties are typically lower than usual, making the recovery a longer path than originally suspected.

 

Living with a cat

A few months old, in her perch by the window

 

For much of my life, dogs were the preferred pet. Because most of my life I lived in apartments, I only had a few dogs over the years. My second wife wanted a cat, so I brought one home from the SPCA. We realized he had been born around the Autumnal equinox, so we named him Autumn. He was a blonde tabby, exceptionally clever and playful I even taught him to fetch. When we divorced my ex-wife kept him. I was called when he needed to go to the vet, and when he eventually died, I buried him.

My third wife was a dog person, when we met she had a rottweiler. She wasn’t exactly afraid of the dog, but she feared he would one day attack me. One night we were playing and he snarled, and she decided to have him euthanized. I do not believe I was ever in danger, but fear is not a rational thing. She had a deep scar on her face from the dog, and didn’t understand that dogs could snarl during play.

We went a few years without a pet, then we started to see mice in our apartment. Emma was unusually frightened by mice. She genuinely believed they were taunting her. One day she called me at work, from atop a chair, to tell me to come home immediately because the mouse was laughing at her. I arrived home a few hours later and she was still on the chair. This is a woman who threw a meat cleaver at me once. I called the landlord and got permission to have a cat.

A woman who frequented the restaurant where Emma cooked rescued cats, and had just found a litter in a box next to the highway in Delaware. We chose a little tortoiseshell furball, and Emma decided to name her Autumn because she looked like a pile of leaves. When we took Autumn, she fit in the palm of my hand. Today she weighs fifteen pounds.

Autumn proved to be an excellent mouser, although she didn’t always clean up after herself. I found a dried carcass under the sofa, and one time she entered the bedroom with one in her mouth, holding it by the tail. At first we thought it was one of her play mice, then she casually flipped her head, throwing the mouse onto the bed.

Autumn is a cave cat, she likes to hide in small spaces. When she was little she would climb under the covers. She has always slept with me, at first on my chest, then between my legs (try turning over with a ten pound cat on top of the covers between your legs), now at my feet. When we get in bed she follows me into the room, and once I’m settled she jumps up and finds a place to lie against me. I don’t know precisely which year we got Autumn, it must have been around 2005, making her about fourteen now. She bonded strongly to Emma, who was home most of the time, and Emma loved Autumn possibly more than she loved me. Autumn would hide whenever we had guests, one time when a home nurse was administering an IV of Methylprednisolone we heard a muffled “meow” from the sofa, Autumn was hiding inside. When Emma was preparing to leave the hospital for home hospice, all she could talk about was sleeping in her own bed with Autumn. She didn’t make it home, and with the first grieving visitor Autumn came out to the guests.

Since then she has moved with me to Princeton, to live with my new family and their cats. Rascal and Leroy were large males, used to living on the street. I once saw Rascal casually walk across the street to block the path of a bulldog walking down that side. The two males let Autumn know it was their house, and were rarely friendly to her. When we all moved to another house it was Autumn who was the first to explore every nook and cranny while the boys stayed huddled in the cat room. They accepted her as an equal.

Autumn has seen several women pass through my door, first Emma, then Lieve, then a couple of girlfriends, and now Sam. Sam was not an animal person at all, but she has come to adore Autumn. It is comforting to have another human to occupy Autumn, I am always the one who administers medicine and takes her to the vet, so at times she doesn’t trust me much.

One thing I have taught Autumn to do is whisper. Sam didn’t believe cats could whisper, and was amazed to see her do it on command. She “guards” me, according to cat body language folks; standing next to me and facing away. When I come out of the WC, there she will be standing guard. Following my TBI she rarely left my side. My psychiatrist wrote a letter identifying Autumn as my support cat, which came in handy when we moved to a no pets building.

Autumn provides a great deal of emotional support for me. I cannot consider losing her. I can not. But she is sick, and I have been forced to consider life without her. She started vomiting in October, so I took her to the vet, who did blood tests and X-rays and gave her anti=nausea meds. The vomiting returned after the meds wore off, so we tried it again, more tests and meds, this time when it returned the frequency had increased to more than once a day. The vet recommended an ultrasound, so we took her for that and they found a thickening of her intestinal wall, which could indicate irritable bowel syndrome, or lymphoma. To determine which it is, they want to do biopsies. I took her for the appointment, but the feline internist didn’t want to do the biopsies without more tests, so she ran those. When the results are in we will talk about biopsies. In the interim, we’re keeping Autumn on the anti-nausea meds.

The question that flashed by was “how much do you want to spend on a cat?” Autumn is far more than just a cat, and it really isn’t costing that much money. Yes, I’ve spent about $2000 so far and the biopsies will run closer to $3000, but in her lifetime she has cost me very little. Vets, food, and litter probably run about $250 a year, so an additional $5000 amortized over fourteen years slightly more than doubles that amount. My greatest fear is she might have a bad reaction to the anesthesia. Biopsy would be either through endoscopy or surgery, the internist seems to prefer surgery, but to me that is too big of a risk. I prefer the endoscopy.

I never thought she would live forever, I just didn’t think about her mortality at all. I am fairly sure she’ll pull through this, I just hope whatever meds she has to take taste good. She hates the anti-nausea pills, even when I crush them and dilute them with a can of food.

Antisocial media

I used to enjoy social media. It has been a great way to publicize my writing and to connect with old friends. I have made several new friends, the majority of whom are other writers. Just like your job, we do not all think the same, the difference is we are eloquent when we disagree, and we tend to use verifiable facts in our arguments. We also rarely misspell insults. I’m not “spoiled,” this is how it should be.

Over the last few weeks there has been a change. Those of us dedicated to accuracy have been run over by a mob of semi-literate terrorists. In the interest of maintaining my spectacular blood pressure of 110/80, I have abandoned social media. I remain disturbed, I cannot organize my thoughts through all the static.

The storm has been brewing for some time. Civil discourse was a precious commodity, shared almost sacredly among writers, although thoroughly unexpected when interacting with the masses. In public comment columns it is disturbingly normal to see retorts such as  “your stupid,” and “goggle it” (when a person is too lazy to provide references and demands you do it for him, while misspelling the name of the most popular search engine). Insults and attacks are on the rise (US representative Maxine Waters recently called for mob action), and much like when I was a child and heard Archie Bunker use words which I did not understand outside of the fact they got a reaction, the actual words used as insults are meaningless. “Racist” and “NAZI” have both been used so excessively they mean nothing (sad because actual racists and NAZIs actually exist and now can fade into the background), and rather than become more accurately descriptive, the insults have just gotten more vile (vile people use vile words. . .), now “motherfucker” has become the go to response for the inarticulate.

If it were only the language it would not bother me nearly as much as it does, it is the lack of reasoning that chills me. The above example of “goggle (sic) it “, represents an expectation to be believed without question. Skepticism, perversely, is both embraced and rejected, fitting for a schizophrenic society. Doubting news sources became a political pursuit some time ago, giving birth to fact checking websites, which almost immediately were identified as biased themselves. The first news source to be vilified via political leaning was Fox news, or as it’s detractors prefer “faux news.” I’m guessing the poet who created that name pronounces the two words the same way. Fox faced the spurious charge of being the only biased news source, allowing the following corollary; if everything Fox broadcasts is false (because it is a conservative viewpoint), everything else is true. In a world defined by virtue signalling, skepticism about beliefs that are unpopular is good, while skepticism about beliefs that are popular is bad, with “popular” becoming the new definition of “true.” Believing everything is either good or bad results in binary thought processes; a world of black and white contains no grey. Schrodinger’s famous thought experiment could not have been created by a binary mind, in fact, not many works of art or even engineering could exist without the ability to see in between the extremes.

I can understand Fox news being dismissed by a partisan mind, the partisan mind has no interest in accuracy. That goes for anyone, conservatives dismiss liberal news sources, liberals dismiss conservative sources. It has gone beyond that. Recently I saw several people dispute a memo from the Department of Homeland Security (DHS). In the frenzy of crying children which the main stream media considered “reporting” on the story of families being separated at the border (full disclosure, I have never been separated from my family at the border in scores of crossings, call it “citizen privilege”), DHS released a paper on what was actually taking place. You know, the people actually involved in separating families, arguably the best possible source of information. I watched several keyboard brown shirts dismiss that information as inaccurate, some citing a story in the New York Times (NYT) without a link to the actual story, which they claimed quoted a memo from the Attorney General. One possible story in the NYT which appears to be the one referenced does not actually contain the “proof” it is claimed to contain, which might be why it was not provided as a link.

I understand there are people who trust the New York Times more than the Department of Homeland Security. There is a remarkable number of people who believe the Earth is flat, they just don’t get as much support from the media. The NYT has a Wikipedia page dedicated to their retractions, while DHS has never found the need to issue retractions. The media, after a long process of building trust that includes Murrow, Brinkley, and Cronkite, has squandered their reputation with talking heads whose interests are ratings rather than accuracy. Print media has lowered itself to the point that USA Today, once a joke among journalists, is scolding AP and Time over their standards.

Retractions may appear to indicate integrity, but they do not. The recently “corrected” story in Time about children separated from families cannot be unread, the cover cannot be unseen. That information remains out there, and despite the notice stating it was “corrected” (for people who show no regard for language, they’re awfully careful about the words used to describe their activities), I have seen people produce retracted stories as evidence, twisting their interpretation of the retraction into meaning the story is true.

The internet has produced a breed of “citizen journalists” with no concept of journalistic integrity. Crowd sourcing the news only creates static, as the loudest voices push their point of view. It is the theatre of bullies.

 

 

I most likely will return to social media. I was silenced, but as I considered the words of Elie Wiesel, I realized I must speak. There are plenty of voices out there, the majority of which are misinformed, ill informed, or just flat out lying. I had left my inner warrior behind, but I cannot be silent as my country is torn apart.

I don’t want to know

My last wife had the most annoying habit. We had different political backgrounds, and she would make statements about mine that were false. When I would try to provide her with correct information, she would say “I don’t want to hear it,” and put her fingers in her ears. In a sense, I suspect this was the reason we divorced. She couldn’t handle constant reminders that the world did not revolve around her. I could not fathom a refusal of information, learning was part of why I loved her; she routinely presented ideas I had never considered, a few of them made sense.

Recently I found myself in something resembling her position. A person presented a thoughtful collection of data and studies that I refuse to entertain. The data was too well recorded and interpreted to throw it away out of hand, it may very well be true, or it could be false, I don’t wish to investigate. It is knowledge I refuse to possess.

The young (42) man who presented the information did so in a sincere manner. Having been inundated with claims of institutional racism being the cause of poor test scores among people of color, he sought out and collected data indicating that differences in intelligence are genetic, racial by nature, and not caused by environment. Were I to entertain this train of thought, it would tarnish my relationships with people of color (by the way, when did white stop being a color?). Certainly anecdotal evidence refutes the claim, I have known white people who were barely in possession of survival skills, and people of color who were brilliant, but I know anecdotal evidence is meaningless in the larger sense.

We discussed my refusal at length. I defended my thought process, which perhaps is a bit esoteric. He did not understand my position, and I realized I could not offer an argument he would understand. He rightfully sees himself as a victim, and seeks defense. For him, the facts are important, because they refute the false claim he (and all other people of his color) are racists. I am older, and simply don’t care what names I am called, because I know who I am.

In contrast, someone else said to me “Do you know that scientists have discovered a traumatic marker in mostly all African descendants in the U.S. that started in slavery in our DNA?” As preposterous as that concept is, I was curious. Was it possible that some incredible leap in genetics happened that I had not heard about? I asked for a reference to the data, but folks don’t really understand how to provide references so he sent some screen shots of the headlines of articles making the claim. From those I was able to find the name of the scientist who published the study which had been twisted into the claim. Rachel Yehuda, PhD, Professor of Psychiatry and Neuroscience at Icahn School of Medicine at Mount Sinai, had done a study in 2015 of thirty two holocaust survivors and their offspring, coming to the conclusion that trauma can be passed on genetically. The idea was briefly popular, and then soundly debunked.

I wanted to believe this was possible. I looked farther than the initial claim, even without references. I could see the flaws in her initial study, but continued to look for supporting research. It just isn’t true, like many other ideas that are accepted because they sound like something that could make sense, it doesn’t stand up to scrutiny.

Another friend, reflecting on Matthew 26:11 ( For ye have the poor always with you; but me ye have not always.), brought up reasons for fighting an unwinnable war. We cannot eliminate poverty, but we can provide comfort for its victims. There are many fights worth fighting, as long as we don’t lose sight of the goal. When the goal becomes impossible, we are fighting the wrong fight and need to reevaluate the goal. By providing comfort to victims of poverty, we are fighting poverty.

I see these unwinnable wars overtaking civil society. For starters, can we de-escalate the rhetoric and stop calling them “wars”? As war like as many people wish to appear, they just don’t make good soldiers. Good soldiers fight to restore peace, most folks today fight for an opportunity to keep fighting. There was the war on drugs, the war on crime and the war on poverty; then suddenly everything was a war. Women, Blacks, Truth, Science, you name it, any difference was framed as a war. The main enemy being “people who don’t think like me.” The civilian, having been assigned the role of warrior, responds in the way he imagines a warrior would respond. The fights never end.

“What about” has become such a popular argument ruse that it has its own new word, whataboutisms. The idea that misdeeds can be mitigated when preceded by misdeeds of someone else. Two wrongs still do not make a right, and it is off putting to have to inform adults of this fact. This image trades on whataboutisms, but instead of continuing an argument it attempts to soften one.

 

I don’t think many people respond well to attacks. They become defensive and any exchange of ideas comes to a halt. We can disagree without insulting each other. No solutions are reached through snarling, one has to respect the person they disagree with in order for anyone to change their mind.

A day of firearms in America

Yesterday, 24 March 2018, was a day of firearms. Groups of children marched in the “March for our lives,” the latest anti-gun movement. I went to a gun show, and saw families shopping together. My cousin in law in Texas taught his five year old grandson gun safety.

Earlier in the week, the police in Princeton NJ murdered a man at the local Panera, which is now covered with signs blaming everyone except the Princeton Police Department. Apparently the NRA is responsible for the lack of negotiation skills in the upscale sanctuary city.

I do not believe it is correct to say “everyone is passionate about their position on guns.” The anti-gun nuts lose their passion a week or so after each tragedy. They dig the spotlight, but the actual work of overturning the Constitution is of little interest. Personally, I find it difficult to argue with people who are arguing based on emotion, they rarely bother to learn anything about the subject and lack civility. Their self awarded moral superiority tarnishes rapidly under the light of reality.

Remington Model 12 pump action .22 caliber

So while the kids were marching to ban guns, I went to a gun show. I’ve been to many, they are common. The rifles I would like seem to be overpriced, but I did pick up some cases and ammunition. I had a nice conversation with a young man who was choosing a shotgun for his daughter. She’s eleven years old, and very slight of build, but from what her father says she is very good at Trap shooting. It brought back pleasant memories of shooting with my daughter, who was a natural marksman. I spoke with a couple of young men who were selling Remington Model 12 rifles (one I am interested in). This was the first rifle I owned, at about twelve years old, but today they sell for as much as twenty two hundred dollars. We agreed it is a dependable small caliber rifle, but they had no intention of lowering the price, which was about average among the dealers present. I had a couple of conversations with dealers and other customers about the other rifle I was looking for, the Lee-Enfield model 4 in .303 British.

Lee-Enfield model 4 .303 British

It is difficult to find the Enfield with it’s original stock, and it just doesn’t feel right with modern wood. My last one had seen service in Korea, I sold it when money was tight after my second divorce, they go for between six hundred and seventeen hundred dollars now.  I still have cartridges in .303 British, and it is the most battle proven military rifle in existence, having seen service since WWI; the Afghani’s used it to repel the Russians in the 80s. My oldest daughter could put five rounds into the ten ring at one hundred yards with it when she was twelve.

There was a nice couple selling home made soap, they had some molded into the shape of a pistol which they said they sold out of in December, and plenty of other friendly people selling gun related objects.

My cousin’s husband used the day to teach his grandson gun safety. Because that is what responsible gun owners do. Even though his guns are safely locked away, little Noah may come across other firearms as he grows up, and needs to understand how to handle them safely. Intelligent people teach their offspring to respond to potential dangers with knowledge rather than fear. There is always the possibility Noah will grow up to be anti gun (although in this family it is unlikely), but he will always be safe.

Noah learns to handle a rifle

Meanwhile, in this wonderful Democratic Republic, crowds of children were encouraged to march in protest against gun ownership. Even the Pope got involved, maybe because he realized that America is not a theocracy and wanted someone who might be listened to speaking. Fear of guns is not far from fear of the dark. The unknown is scary, and to children, responsibility is scary. Congress, who only weeks earlier were calling on soap manufacturer’s to make their products less appetizing to children, is now being asked to listen to the wisdom of children.

As the logic twists further, the goal of this movement is to tell congress to listen to children because they have not listened to adults. They have listened, just not to people proposing violations of the Constitution they swore to uphold. The path to an amendment modifying the second amendment has not changed in two hundred and thirty years. It has not been approached, rather laws infringing on the right to bear arms have faced challenges in court, and routinely failed. All that has to happen is to pass an amendment and have it ratified by two thirds of the states, then the laws can change. Unfortunately, those wishing to ban guns pass laws which criminals do not (by definition) obey. Changing the Constitution would at least keep guns out of the hands of honest citizens, but that approach has not been tried.

Panera Bread in Princeton

Following the murder of Scott Mielentz by Princeton police, locals protested bread. Had Scott been a member of a minority, the town would have burned, but because he had financial troubles he was cast as an outsider, and the police exonerated by the locals. I have no sympathy for the Princeton police, they have the money and time to be properly trained.

The facts of the event are fairly straight forward. Mielentz was suffering from PTSD, which put him beyond the understanding of a police force that has never been exposed to trauma. He walked into Panera with a handgun, which some reports have referred to as “brandishing a gun.” Everyone in the store left, leaving Mielentz alone. Police blocked the streets for blocks around the store, and schools, some miles away, were placed on “lockdown.” For five hours, the police claim to have “negotiated” with Mielentz, with his only expressed statement that he be left alone. As shift change neared, Mielentz was killed by a single shot through the window, the only shot fired during the event. Mielentz posed no immediate threat, so the circumstances of the incident must be presented to a grand jury composed of 23 civilians for independent review by state law. If there is Justice in the state of New Jersey, the officer responsible will be tried for manslaughter at the very least. But expecting justice in New Jersey is foolish.

The signs outside Panera spoke directly to the children’s march, but I don’t suspect anyone was paying attention. “NRA there is blood on your hands” could have been crafted by my ex-wife, who ranted incessantly on Facebook after the Stone Douglas incident with the same words (with the opportunity  to respond turned off because that’s how you show how passionate you are, making statements that no one can respond to). There are a couple with AR-15s on them, which is most likely the weapon the police used. There is a sign which reads “Guns kill, not save” in which they misspelled “Police” as “Guns.” Lots of calls to end violence following a largely non-violent event. Oddly, there were no signs at the Police department.

America is a wonderful country, with a government restrained from tyranny by a perfect Constitution. I say perfect because built into the Constitution is a format for revising it. We realized people should not be property and enacted the thirteenth amendment. We realized that our former slaves were not equal until they could vote and enacted the fifteenth amendment. Fifty years later we realized that women were equal in rights and enacted the nineteenth amendment. If the populous was truly interested in banning guns, an amendment could be proposed nullifying the second amendment. So far, nothing.

In the meantime, we may react to the “gun problem” in many ways. Some will fight to ban guns, others will fight to protect the right to bear arms. I cannot think of a single instance in which a solution was reached by shouting, so civil discussions would be the best path to pursue, which requires education. Banning guns which do not exist helps no one. Banning guns based on how they look works the same. If gun owners are so stupid, how is it they understand the features of guns and the anti-gun nuts do not?

All of us need to treat our opponents with respect. Of course, if we really respected each other, guns wouldn’t seem nearly as scary, because the people owning them wouldn’t be as scary.

 

Old Vulcan Proverbs

I remember the first time I heard this, how my girlfriend at the time laughed and I recognized the profundity.

I see the advertisements for the film “The Post” and can only laugh at the line “The untold true story.” I think we all know enough of the story to know that line is blatantly false, as a moronic Illuminati attempts to rebuild the reputation of the Washington Post.  I’m sure Jeff Bezos is proud, but the fact is the Pentagon Papers were released to the New York Times, the Post printed a story about it a week later. The president(s) whose dishonesty was displayed was not Nixon, it was the work of five previous administrations. In its rush for an anti-Trump metaphor, the film totally misses the mark, except in the minds of those so filled with vitriol they can’t be bothered with facts. Nixon acted with honor, defending the state secrets of the Pentagon Papers, not the actions reported; and by resigning in the face of impeachment. Trump is no Nixon, at least not in that sense.

Trump is the one who can go to Jerusalem. In 1995, without presidential signature, the houses of congress passed the Jerusalem Embassy Act of 1995. In the ensuing twenty two years, the implementation has been suspended every six months by the sitting president. Every. Six. Months. Both Bush and Obama did it sixteen times. Even Trump suspended the move on his first opportunity; and then he did not.

Pushed by Arab members to condemn the move in the United Nations, the security council tried, forgetting that the United States has right of veto in the Security Council. A second attempt was made in the General Assembly, and passed with a margin of 128 to 9, with 35 abstentions (some might count that as 128 to 44). Even formerly strong allies voted against the United States. While word spread in the media that the world was laughing at the United States, ten countries stated interest in moving their embassies to Jerusalem. It took eight years to formalize diplomatic relations with China following Nixon’s visit, nothing happens overnight. The first step was waiting to be taken, waiting while Clinton, Bush, and Obama pushed it aside.

Times are tough in America for those looking to think for themselves. There is very little thinking taking place. Discourse has been replaced with accusations, skipping past arguments and just leaping to insults. It is unfortunate that this lack of ability to communicate coincides with so many messages, or perhaps that is the point. The message of the last election could not be more clear, but very few heard it. Two indefensible candidates that continue to be defended to the death of many friendships. Politicians are politicians, regardless of background. Yet today, 65% of Republicans believe Trump will serve a second term while 45% of Democrats believe he will be impeached (Rasmussen). After everything, the concept of having a third choice is ridiculed. This is technically referred to as Cognitive Dissonance.

Trump is a clown. Only a fool would deny it. He is not Hitler. Only a fool would insist he is. He is a human being, as out of touch as anyone at his cocktail parties, which have been attended by politicians from both sides of the aisle, including his last opponent. This is my level of support for the president. He is the president. He has committed no crimes worthy of impeachment. He has followed the constitution in the administration of his duties.

After eight years of a president who hyped himself at every opportunity, starting with a Nobel Peace Prize for having a nice smile (“extraordinary efforts to strengthen international diplomacy” while a senator from Illinois) and ending his term by giving himself a medal, the expressed annoyance at Trump’s foolishness is disingenuous. And this is yet another lesson of the election which continues to be overlooked. The press is biased. Five minutes of air time was devoted the other night to dispel Trump’s claim that he was responsible for zero American deaths on civilian aircraft. Why? Let it go and move on.

After sixty five years, North Korea has developed a fusion weapon and an intercontinental ballistic missile to deliver it to the United States. At least Kim Jong-un believes so. He also believes that the Korean war is still active, along with a few odd ideas on social welfare. He is by almost any measure insane, yet the press would have you worry that Donald Trump has access to nuclear weapons. In case there is still someone who hasn’t noticed, Kim Jong-un has no interest in diplomacy. He makes threats, and is a dangerous individual who has murdered family members. He is more likely to respond to a reminder we not only have nuclear weapons, but have used them, than he is to appeasement. Trump is the president to deal with him. They speak the same language.

Just as the Dream Act was known in Paraguay before Pittsburgh, the news of Trump’s immigration policies traveled faster than the policies have been implemented. Illegal border crossings fell precipitously as soon as Trump took office. Talk of a great wall worked as well as an actual wall. There is clearly a place for tough talk, particularly when the speaker is  capable of inducing fear.

The incredibly ineffective Paris Climate Accord was rejected by Trump. Regardless of your opinion on anthropogenic global warming, the accord did zero to effect change, in fact allowing the countries with the worst pollution to pollute more. Only Trump could unsign the “treaty.”

The negative attitude pushed by the press is not healthy. Neither is the jubilant “everything is wonderful” chants of Trump’s supporters. It amazes me, that after all the presidential misbehavior which has come to light about damn near every president there is such faux outrage about Trump, but it shows the level of (in)tolerance and hypocrisy in society today. We have, as a society, become too demanding of each other. We demand perfection while acknowledging perfection is impossible. That is a recipe for frustration. As we close our circles ever tighter, we lose the ability to interact with “others.” People who don’t believe every single word of what we believe are “others,” the diversity of our melting pot has been reduced to including people who are left handed.

Trump is antagonistic and belligerent. He is precisely what we need in a president right now. We need to figure out how to deal with people who are different from us, because a lot of the time they’re the ones with solutions. I want to believe this experience will make us better people, but I am routinely an optimist when it comes to human interactions (four wives is a clue).

Wherever your sympathies lie, I am not asking you to reverse them. I’m just asking you to stop fighting. There are things you can change and things you can not, just as there are things Trump can do and things he can not. The world will not end, and just as conservatives said when Obama was elected, everything can change after the next election. Get out there and discuss, debate, build alliances that will weather any administration, it is unlikely this will be the last.

 

 

Assault

Some funny things have come out of the #MeToo campaign. Okay, I use the word “funny” to describe things which have no humor about them.

The stated intent was to show victims of sexual assault they are not alone. This result may or may not have been achieved. We are certainly aware a large percentage of people, both women and men, have been comfortable enough to say “Me too.” This is enormous. Although the campaign was originally supposed to be about women, many men have come forward as well, uncovering the secret that any discussion about sex includes all sexes. Unfortunately, even with the barrier lowered from “experienced sexual assault” to “experienced sexual harassment,” the experiences have been exposed as, and this should come as no surprise, personal. One person’s assault is another person’s compliment. This has been difficult to digest for a digital world unaccustomed to nuance.

Society requires sensationalism. It is no longer satisfactory to say Susan doesn’t like Charlotte (who happens to be black), Susan is a racist.  If Andy is uncomfortable with homosexuals he must be a homophobe.  If Henry lets everyone in the room know he’s available he’s a sexual predator. If Cindy voted for a conservative she’s a NAZI.

One of the reasons a large number of victims of sexual assault did not come forward in the past is because they did not feel they would be believed. There are two parts to the reason they felt so. The first is because the primary defense to such accusations was to blame the victim, and in cases of sexual assault the psyche of the victim had already been crushed once. The second is that a fair number of accusations were false, because even the accusation is enough to destroy some lives; one false accusation can be used by countless defenders of the genuinely guilty.

I do not like to denigrate anyone’s pain. We all have different tolerances, and while in many of the experiences described as “sexual assault” no assault took place, the victim was damaged in some way. The important thing to remember is that damage does not refer to the act, only the result. If Charlie walks into the office and says “How is everyone today?” and Norma is having the very worst day of her life, Charlie did nothing wrong. Neither did Norma, until she claims Charlie harassed her by asking. Making claims of abuse when none has taken place is abusive in itself.

Some of the more abusive claims I have heard in the last few weeks have included a woman who claimed her assault took the form of a man referring to her as “honey.” One word, one time, no other context. Another woman claims to have been sexually assaulted by former President George H. W. Bush, four years ago when he was eighty nine and confined to a wheelchair. Mind you, in both these instances the word “assault” rather than “harassed” was used.

My own most frightening instance of sexual assault was only intimidation, there was no physical contact. I was twenty, driving an ice cream truck through the projects in California when I was surrounded by a gang of Chicanos. One reached through the window and removed the keys, a couple other ones started rocking the truck, tipping it enough the wheels would come off the ground, and the leader hung on the window telling me how they were going to “bone” me. As it was, I had another key and was able to escape, but I was terrified as I lived across the street from the projects and parked my truck out front, it was altogether possible they would see me at some point. I quit that job and moved across town about a month later. So I understand that no physical contact is required to create fear, but I maintain the threat of violence (in any form) is a requirement in order to designate assault.

I have been party to other conversations in which I was told that a difference of opinion threatened the person’s very existence. Fear is present, with no threat. Fear is beyond understanding, it is irrational, which is why it holds little legal standing.

This is why words are important. Assault is a crime, claiming you were assaulted implies someone committed a crime. Falsely accusing someone of a crime is a crime by itself. The lesson we should all learn from the #MeToo campaign is communication is crucial, and without words that have common meanings communication is impossible, often at the time it is needed the most.

It is fairly normal to be uncomfortable from time to time (sorry millennials). The level of that discomfort is the measure of trauma involved. I feel safe in saying everyone has at some point in their lives been uncomfortable in a sexual situation. This does not mean everyone has been sexually assaulted, what it means is that we all deal with life differently. Each and every one of us. My first “sexual assault” (different event, heterosexual) might be described as someone else’s fantasy; I was just unprepared that time and it was outside my desires. It was however an assault, I had no interest and the woman forced herself on me. I would never consider the millions of times I have been referred to with “terms of endearment” as sexual assaults, anyone who does is in need of psychological counseling as they are incapable of social interaction.

My hope is that the #MeToo campaign encourages conversations (dialogues rather than monologues), and those conversations create understandings. Some of those understandings are going to result in trust, some of them may result in discovering over sensitivity, most will result in growth. That would be a good thing, and the world needs some good things.

 

My old school

NPHS class of 1977

Nothing reminds you of the passing of time like a High School reunion. It has been forty years since I have seen some of these people, and we had a wonderful time reminiscing.

I have been thinking of abandoning writing. It is no longer easy, I have not written in a month, and I had already started the first draft of my exit. For perspective, I have never written drafts in the past, I just wrote. At a pre-reunion get together on Friday, I received several meaningful compliments, words such as “eloquent” and “thought provoking” were repeated. The very best came from my friend Carrie, who said “I don’t always agree with you, but you make me think.” What more could a writer ask for?

We have spread about the world, and a surprising number of us stayed nearby, some still in town. I’ve been out and back, some never left. Ten percent of our class has shuffled off the mortal coil, which seems high; although there have been a few instances in which I could have been a member of that group. We are, as a generation, perhaps the last of the risk takers.

My own memory is a bit damaged, I could not recall everyone, but I was warmed by the way I was remembered. One man, football player then, told me how he realized later how brave I had been. He spent thirty years teaching High School students and saw how difficult life can be for the outsider. I arrived in New Providence for my last years of High School from California, a long haired freak in a buttoned down community. Forty years later I am still the long haired freak, but the community has grown in many ways. Still some bickering over the election, but for the most part we are a mature bunch. Closing on sixty is a part of that I suppose.

Tied to this were packages from both parents, photographs and memories of my youth. There apparently was a period in my teens when I grew a mustache and goatee, I saw a picture of it a few years ago and my father sent me several others, in which I was wearing a yellow blazer of which I have no memory. I’m hoping they reflect a bad week, the combined photographs represent two moments.

I am fully aware that I do not remember everything. A bit of a disappointment, but considering the memories I have confirmed as true, it’s been a good life.

 

 

 

 

Rabies

In looking for an analogy for today’s topic, Rabies appears appropriate. Rabies is exceptionally rare, between 2003 and 2013 thirty four cases were diagnosed in the United States, and although three cases are listed as “survived,” I suspect the diagnosis in those cases, as there is no cure. Even though the rate of human infection is .00001 percent of the population, every pet is required to be vaccinated against Rabies, because the issue is not prevalence, it is mortality. I have been vaccinated against rabies after contact with rabid animals (twice) and as you can see I did not contract the disease. Had the virus taken hold in my system I would not be here, thankfully the vaccine regimen is much more simple than it was in my childhood; a series of four injections intramuscularly (deltoid) and one dose of Human Rabies Immune Globulin near the site of exposure rather than fourteen injections in the abdomen (a friend from Cuba had fourteen injections into his lungs).

My topic today is another “R” word, “Racism,” as expressed by a rag tag mob calling themselves “White Supremacists,” as well as a large number of people who consider anything with a scent of racism the work of White Supremacists, NAZIs, or the KKK.

This weekend has seen a couple of events staged by White Supremacists. An event in Charlottesville Virginia drew hundreds of them from all over the country, and thousands of counter protestors. There is no question as to which side is larger, for some reason the counter protestors express fear, giving the minuscule number of White Supremacists the power of intimidation. There have been counter protests in cities across the nation, proving to everyone the racists are outnumbered. In the analogy of Rabies, racism is skin redness, identifying as a Racist of any stripe is viral infection. It is rare but deadly. The victim is the soul.

There have been three fatalities reported, a woman struck by a car and two police officers in a helicopter that crashed. The wounded number far more, as any display of hate creates more hate. The kettle of hate is overflowing, as the present first lady echoes the last in saying “Our country encourages freedom of speech, but let’s communicate without hate in our hearts. No good comes from violence” more hateful hearts were busy accusing her of plagiarism than accepting the message of peace. The word “racist” is losing any meaning, as it is thrown around so freely to include “anyone who doesn’t agree with me.” There were actual racists in Charlottesville, free to express their “pride” under the cover of a population that has been called racist for the crime of being white in the South. In fact, slavery and racism are more likely to be encountered in the North, where foriegn nationals  are commonly “kept” as housekeepers and treated as sub-human. Human trafficking is a fact in every state, and every country in the world; it is not limited to people of color.

Addressing the 1968 race riots in Baltimore Maryland, President Lyndon Baines Johnson, who had signed the civil rights act into law just four years earlier, said “What did you expect? I don’t know why we’re so surprised. When you put your foot on a man’s neck and hold him down for three hundred years, and then you let him up, what’s he going to do? He’s going to knock your block off.” Blow-back from centuries of racism should be expected, and tensions do not disappear overnight. Racism is a human trait, tied to the evolutionary tool of Xenophobia. Human. I am as different from you as you are from me.

President Trump was criticized for saying there are many hate groups, Lady Gaga was criticized for trying to turn down the hate. The criticisms of both echoed hate rather than a desire to end hate. A shouting match has never ended in a peaceful resolution, no one has ever calmed down after being told to. This is what disturbs me. I feel we were closer to calming racial tensions in the 70s than we are now. Civility in social interactions is as likely to be seen as a Dodo delivering the morning paper.

It is as natural for people of color to distrust whites as it is for whites to distrust people of color. Neither side is “right.” Fighting creates wounds, which memorialize the pain, keeping the distrust alive. Both sides need to stop, and overwhelmingly they have. Pockets of hate, be they NAZI, KKK, BLM, or Antifa, are only pockets and do not represent society as a whole. Saying they do insults the people who are not part of those gangs, and ends meaningful conversation with them.

We have arrived at a time when words are weapons. Choose yours wisely and help stop the hate. Uhura said that in her century we will learn not to fear words.

 

To do so, we need not only to know who we are, but take satisfaction in who we are. To accomplish that, we need to extend the same courtesy to everyone else. It starts with me. Now it’s your turn.

Conflicting memories

There is this feature on Facebook called “On this day.” It is a collection of posts you made on the date through the years, I usually see things I am happy to be reminded of, even the less than pleasant moments show I have survived.

I used to be a photographer, and one of my influences was Henri Cartier-Bresson. Cartier-Bresson conceived the photographic concept of “decisive moment,” as he said “To me, photography is the simultaneous recognition, in a fraction of a second, of the significance of an event.” I took this to the mechanics of film photography, where an exposure could be 1/1000 of a second. There are nine hundred ninety nine thousandths in the second which are not captured in the photograph, along with the countless seconds, minutes, etc. in which no camera was present. A story can be told in 1/1000 of a second, and it may be a completely different story 1/1000 of a second later.

Some days I posted several times on Facebook, there was usually a mood I could get from reviewing the posts, a pattern which gave me some insight into that day. Some days I wonder what I was thinking, how those seconds reflected my mood.

On this particular day, three years ago, at 1003, I posted a video from the concert I had attended the night before (Beck). I remember how much fun we had, how we were dancing so much the video is hard to follow. At 1740 I posted “If anyone needs a roommate, or would like to share a nice place in Princeton, it looks like I’m single.” About an hour later I posted video of a song by the Cars I had taught my step-granddaughter to play on her toy xylophone fifteen years earlier, I commented she was in college by then (2014).

I looked through the comments on the “looks like I’m single” post, and realized again how abrupt it had been. A month earlier I had thrown a lawn party to celebrate Lieve’s American citizenship. We had met not quite four years earlier, and now three years afterwards we don’t speak at all. Somewhere along the line I should have gotten angry with her, I’m sure there were moments, but I had kept my happy memories, and continued to care for the belongings she left in America until she returned. She swept into my life, found what she wanted, and swept out.

Yes, there is insight from this. I am a doormat. I look only slightly deeper and see more similar behavior on my part, my next girlfriend moved in, spent most of her time in Florida, and abruptly moved out, then claimed she couldn’t trust me with her belongings after complaining about how I took care of Lieve’s things (her opinion had been I should throw it all out, we actually argued about it). That entire relationship took only six months, I had become a more efficient doormat. I still collected the things she missed when she left, and brought them to her door, delaying only to avoid leaving them in the rain. Looking farther back, through the lens of a brain injury which has left me even more peaceful, I can see that with the exception of Emma, my third wife, I have always been a doormat. Probably with Emma as well, she just didn’t take advantage of it. I see it as my quality, and find myself doing it even now; thankfully Sam does all she can to avoid treating me in the manner I fall so easily into.

I know I was miserable for months when Lieve left, but I don’t remember it. I know there were signs we were drifting apart, and although I have no memory of purposefully ignoring them I must have. It seems obvious to everyone I talk to about it, yet somehow I missed it. I remember a woman pretending to slap me across the face and calling me a doormat, people told me but I thought I was being a better person, turning the other cheek and not reacting to betrayal. I still believe this to be true, I appreciate the lessons I have learned from being walked upon, and although I have volunteered for a repeat performances, I now know how to avoid them. The surreal quality of all of this puts me in a peaceful state of mind, which may seem incongruous. I am comfortable in knowing I responded with grace despite the (sometimes literal) attacks.

The artist Rene Magritte said “Everything we see hides another thing, we always want to see what is hidden by what we see.”

This is not a pipe

This is an image of a pipe, it cannot be smoked, the first step in seeing what is hiding behind what we see is recognizing what it is we do see. I see a happy carefree life, and while I desire to see the reality of the moments I remember as happy, I don’t wish to enhance my existing depression. Fortunately, I am able to see it all as a path, I am happy now so this was one path to happiness, clearly there are others.

I let go. I let go of the pain, but not the memories. Not that such an approach has assisted me in avoiding repeats. I have started to let go of the memories, largely because they suggest to me some friendship or relationship remains possible, and that moment has passed. When I see a day such as the one represented by Facebook, I realize I must leave those kind thoughts behind, I do not wish for anyone to be hurt, including me.

 

Polyamory

As much as I loathe Wikipedia, I want to start with their definition, because it indicates the complexity.

polyamory (from Greek πολύ poly, “many, several”, and Latin amor, “love”) is the practice of or desire for intimate relationships with more than one partner, with the knowledge of all partners. It has been described as “consensual, ethical, and responsible non-monogamy”.


Both Greek and Latin roots? No wonder people have such difficulty understanding. Most people define polyamory by what it is not, an inefficient way to convey meaning, but polyamorists tend to over explain, part of trying relentlessly to make sure everyone is on the same page. I like Merriam Webster’s definition better

 

polyamory

plural

polyamories

  1. :  the state or practice of having more than one open romantic relationship at a time

This removes “intimacy” and replaces it with “romantic,” there are always misunderstandings around intimacy, which I have discussed recently. My opinion is that many people repress their sexuality, in most cases understanding very little about their own bodies. When faced with the subject of other people’s bodies the imagination runs wild, unfettered by common sense. H.L Mencken defined Puritanism as “The haunting fear that someone, somewhere, may be happy,” I might add, “and being not, the ensuing envy.”
My interest in polyamory came on the heels of three emotionally devastating relationships. I had been happily monogamous, in some instances fiercely so. I was jealous of the young men Emma allowed to flirt with her, which prompted her to toy with my emotional responses even more. When she died I tried to move forward in monogamy, recognizing the importance of communication. Next wife had little interest in communication (she was the one who would literally put her fingers in her ears to avoid hearing things she did not agree with), but she did say something as she was leaving that resonated. She commented about how difficult it was to love me. Her statement made no sense on its own, but was similar to something a woman between my second and third wives had said. The next relationship I had went much the same way, with Nancy saying “Loving you is hard” and then blaming me for her seizures because she was “too stressed out from lying to me.” It was all starting to make sense, so when the next girlfriend took $2,000 and went to Japan to see her grandson, I didn’t find it as disturbing as I should have. I didn’t even mind when she contacted me out of the blue about a year later, acting as if nothing had happened, I just told her I couldn’t see her anymore. I no longer expected honest communication.

I had decided the best way to reduce stress was to stop expecting fidelity, no one could ever blame me for causing them seizures again. I certainly did not expect what I found. When I met Samantha I knew she had other men in her life. There was nothing to hide. A month later I fell, suffering Traumatic Brain Injury as well as several other injuries. Samantha took a month off work to care for me, showing more devotion and care than most of my monogamous partners had ever shown. She has encouraged me to go out with other women, and I have, I just don’t have the desire for multiple partners. I’ve had drinks with one of her suitors, he invited us to come over for New Years Eve last year.

Most explanations of polyamory are centered on what polyamory is not. Part of that is because there are so many ways to be poly. There is no one right way, but there are several wrong ways. As I said earlier, poly people tend to over explain, often creating new terms so rapidly it is difficult to keep up. Sometimes they try so hard to be all-inclusive they can’t be followed, which is why Sam and I created a group for mature poly people. I think we’ve kicked four people out of the group, three for inappropriate advances, another for trying to tell everyone the right way to be poly, implying they were wrong. Our defining blurb includes “My poly may not be your poly, but part of the exercise is accepting that however we choose to live, we are all still poly. No shaming or denouncing the formats we have chosen. We all have opinions, display the level of respect with which you wish to be treated.” Our group presently has over three hundred members, several whom have told me our group is the only place they feel comfortable being themselves.

The universal rules of polyamory are centered in honesty. You do not get involved in a new relationship without talking with your partners about it. My relationship naturally carried that to “No secrets.” Polyamory is not to be confused with “Swinging,” or meaningless one night stands; sexuality is rarely confused with intimacy; having multiple partners does not mean having them simultaneously. One of the most common, and least appreciated, aspects of polyamory are “Unicorn Hunters,” people looking to add a third partner (usually female) to an existing relationship, for any number of reasons. People are not objects you take from a shelf to use until you tire of them, they are not a spice with which you can spice up your marriage. There are plenty of multi-partner households, but actively looking to “add a person” is unseemly.

Some polyamorous relationships are asexual, simply warm romantic relationships. The focus is on communication, not sexual activity (can I say that enough?). Of course, if you want to produce a television show about polyamory, sex still sells. It just doesn’t tell the story. Or it tells the wrong story. There are enough false stories about polyamory that we become a bit defensive, but the fact is, there are many ways to be polyamorous, so we don’t have a comprehensive argument. One difficulty is dating, the phrase “I’m in an open relationship” has been used by adulterers so many times that OKCupid, a large dating web site, has an accommodation for people who are polyamorous. You can link your profile to your partners profiles, there is no question that your partner(s) knows what is going on. Cheating is just as distasteful to poly folk as mono folk, because polyamory is about loving, not conquering.

I have been surprised by the people who show up at poly events, but then, I’m there. Polyamorous people come from every walk of life, every income bracket, and every political leaning. You may be surprised I am poly. It is a part of my life, not all of it.

Bigotry

I’ve noticed an increase in the use of the word “bigot” lately. I prefer this word to the misapplied term “racist” or the suffix “phobe.” It tends to be accurate in its application.

“Bigot” is defined by the OED as “A person who is intolerant towards those holding different opinions,” and “Bigotry” as “Intolerance towards those who hold different opinions from oneself.” Are these words not perfect for today’s society? “Racist” has been applied in situations that have nothing to do with “Race,” or even a twisted definition of “Race.” “Homophobe,””Islamaphobe,” and “Transphobe” rarely describe a phobia.

For instance, what would you call California’s recent decision to restrict official travel to states with LGBT laws they disagree with? It is clearly intolerant toward entire states due to differing opinions of the governments of those states. We created a United States rather than a single state to allow freedoms and differing laws. California has decided to ban travel to certain states, but still allows travel to China and other countries with active aggressive anti-gay laws. Like a death penalty for being gay rather than no protection from discrimination. I believe the design promotes tolerance, however the California decision is analogous to covering ones eyes and ears. Do not misunderstand, I certainly have no opposition to various sexualities, but denying commerce and communication is wrong on too many levels to count. California has forfeited the ability to be ambassadors of tolerance in perhaps the most ironic fashion.

I had a friend, we attended school together. We reconnected on Facebook a few years ago, and worked on a couple of charitable events together. She, like many of my friends, is a Democrat. Following the election she went non-linear, to the point I had to “un-friend” her on Facebook. I explained why to her privately, explaining there was no place in my life for her “smiling bigotry,” as she would post absolutely hateful things prefaced with excuses. We ran across each other after the shooting in Alexandria of Congressman Scalise. We have mutual friends, so we end up in the same conversations. Still as bigoted as ever, she continued to spew hate, and when she saw I was there attacked me because I had “called her a bigot.” Well, I guess I was right. She’s still smiling as she tells people that not enough Republicans were killed.

Collins Idehen, under the pseudonym Mr. Colion Noir, hosts a webcast for the NRA. He also writes about gun rights and responsibilities. In the aftermath of the Philando Castile verdict, he touched on bigotry, in this case comparing racism and gun control. “However, there is also a problem with some people in this country dismissing racism wholesale when it isn’t overt racial slurs or crosses burning on front lawns. Covert racism is a real thing and is very dangerous. Covert racism works the same way anti-gunners use coded language to push gun control. They say common sense gun measures, but we know what they really mean. We gun advocates spend our time trying to prove to the people that they don’t just want background checks they want to ban guns. The problem is, they don’t come right out and say,”give me all your guns” so no one believes us, but we know the effects are incredibly real. That’s what covert racism is and does.” What he calls covert racism (and anti-gunners) is best defined as bigotry. A decision on how to proceed based on the objects (Blacks, Guns) rather than the situation.

Another example of bigotry comes from a group that prides itself on inclusion. In fact they’ve appropriated the month of June as “Pride Month.” Three gay people who were also proud of their religious beliefs were not tolerated, and excluded from the “Dyke March” in Chicago for carrying a rainbow flag that also contained the Star of David. This time the bigotry is so strong it has overridden self preservation. Convinced by the “progressive” narrative that Judaism is equal to Zionism, and that Zionism is racist towards Arabs, they found the Star of David offensive. Never mind that the majority of Arab culture is Islamic, under which any deviation from heterosexuality is punishable by death, they found it unacceptable to not include Arabs, so they excluded Jews. Maybe the whole “No Hate” program has them thirsting for their natural drive to hate. I can’t really call this an example of bigotry, because I am not as quick to judge the parade organizers as they are to judge Jews, maybe they’re only jerks, and while most bigots are jerks, being a jerk on its own is not bigotry. Antisemitism often hides as pro-Palestinian or anti-Zionism, and each of those groups are bigots.

Bigotry is simply a negative prejudice, often played out as innocence or jokes. When I moved North, after living in Texas and California, I was shocked at the racism. Yes, there was racism in both previous states, but it was overt. You knew where you stood. In the North, it is covert, small bigoted actions which are less identifiable. Guess again folks, just because you’re smiling and claiming to care, you are still causing pain, and pain is easy to remember for most folks. The victims may not be able to identify the event, but they are aware of the pain, your shock when they respond just makes you appear even more false. Political Correctness is not a disguise for bigotry, it is a showcase.

 

 

 

 

 

 

Synchronicity

As I approach Father’s Day, I am surrounded by synchronicity, a set of events which appear to have meaningful coincidences. I do not actually believe in the concept of coincidences in the first place, that they should be meaningful absent a cause is more a mind trying to make connections where they do not exist rather than a deep insight, it is, simply, a vibe. But I like the word “Synchronicity.”

My own father and I have had an unusual relationship. I say unusual because it does not seem to be the relationship my peers express experiencing. We’ve been close, distant, and close again for decades. From what people have told me, their relationships have been stable and unchanging. My father and I have both grown over the years, at some points we were on the same plane, others we were not.

Just last December, I was rather harsh with my father. I will make the excuse that I was exhausted from trying to explain the complexity of my brain injury when he popped in with an email of basically “Well what you should do…” after I had been struggling most of the year to do those very things, but I released fifty eight years of frustration on him. Regardless of what I perceived as aloofness, I went overboard. His response was precisely what I would desire, he didn’t make a big deal about it. Instead, when I told him about my surgery in April, he flew in to spend a few days.

 

Dad as I came out of surgery

 

I contrast this with several other paternal relationships in my life.

I would like to believe my relationship with my children is similar to that with my father, in the sense I love them no matter how much they turn away from me. Just last week my youngest son turned thirty four, we haven’t spoken in a few years, but last I saw him he was holding onto a coat of mine which he had borrowed on a previous visit twelve years prior. He said it was the only piece of me he had. Nolan has not communicated with me in years, but he has not (as his siblings have) blocked me. He is honest, if he were angry he might block me, he just doesn’t want to get caught up in the drama of his siblings disapproval of me. I’m still holding out hope for the siblings as well, but it’s hard to reach out to them while I’m blocked. I just know how I grew in my relationships and hope they will do something similar. They have a few years to go, I was about the age my eldest is now when I found a way to understand my father, but then I wanted to understand my father, I was a bit more curious.

My son Nolan (in my coat)

My girlfriend has a difficult relationship with her father, and as I examine that relationship and attempt to assist in the repair of it, I appreciate my father even more. Where our differences often were the result of one of us growing in a dimension the other had not (at the moment), Sam’s and her father’s issues appear to spring from a lack of growth. From what I can see, their relationship has not changed over their lifetimes, both seeking the ideal relationship and accepting nothing less; Sam seeking her vision of a proper father and Saul seeking his vision of a proper daughter, neither accepting the other’s frailties. I hear actual expressions of compassion from each of them, but each wants the other to change. This is the problem my children have, they resist changing their point of view for fear of it being perceived as weakness, an acknowledgement of their previous point of view being “wrong.”

These relationships, and those of other people I have been close to, tell me there is no “normal” father/child relationship any more than there are normal interpersonal relationships of any kind. It is certainly common for children to love their parents and vice versa, but as in any relationship, one party’s love does not obligate reciprocation.

I believe my father is proud of me, he recognizes my strengths and even though I did not follow the path he had in mind, I have been a productive member of society. I am certainly proud of the good works he has accomplished. Go back forty years and we were both difficult and less mature.

Times change. Some of the things I did forty years ago are unacceptable now, others were odd then but normal now. As I have come to reconcile my brain injury, one of my primary concerns was that I am not who I was before the fall. My neuropsychologist reminded me that no one is who they were last year or ten years ago, we change, the world changes, and the healthy among us adapt.

Some people refuse to let go of their pain. Some people find themselves trapped in a relationship in which their opposite clings to their pain. The healthy thing to do would be to walk away, but parental relationships can be as painful to walk away from as to endure. Parents tend to understand the delicate balance, which is why I had hoped my own children would see our relationship more clearly once they became parents. One more lesson in “just because it worked for you doesn’t mean anyone else will see it.” That is a lesson I need to relearn often.

If there is a secret, that is it. Learn and relearn. As each participant changes, and the world they live in changes, accept and forgive; this project never ends. It would be nice if relationships were simple, but they are not; they are the connections of two unique individuals. You can blame the frustrations on Fitzgerald, “So we beat on, boats against the current, borne back ceaselessly into the past” or you can change the way you look at it. Leave the past behind, and focus on now, accept and forgive.

 

 

 

 

What’s in your wallet?

I am well aware that I do not fit in to the definition of “normal,” the larger question of my sanity remains unresolved.

With a last name of Cash, I have always had an interest in currency. I keep coins and notes from various places in my wallet (European style with built in coin purse), as time has passed and the collection has become more diverse, I have adopted the rationale that when someone someday finds my body, they will be perplexed, it will be my final joke. An inventory this morning reveals;

A 100 Ruble note ($1.69 USD)

A 10 Euro and 5 Euro note ($11.43 and $5.71 USD)

A 1000 (old) Peso note ($0.05 USD)

And in coins;

A Susan B Anthony and “Gold” US Dollar

A 2£ coin

A 100 (old) Peso coin

A Canadian dollar

One French Franc circa 1970

A 2€ coin

An East Caribbean dollar

A two Drachma coin

One each one, two, five, and ten Ruble coins

A Septa subway token

 

Certainly the wallet of a traveler, perhaps a time traveler? Three passports, a couple of visas, don’t even know my real name? Well, most folks don’t, and I’m not entirely certain.

 

 

My days are scattered, this morning I am contemplating the relationship of Tachyons to Dark Matter, whether politically correct revisions at Disneyland foretell mankind’s loss of humor, why two regenerations of The Master are more troubling than multiple regenerations of The Doctor interacting on Doctor Who, whether my younger friends parents were listening to my favorite music when they conceived my friends, and if my new earplugs should be teal or pink. I settled on pink.

Folks will think these are hearing aids, when in fact they are the opposite

 

I had a friend around the turn of the century (this one), when I was working as a technician, and we often said our lives were like having seventeen video screens on at once. Recently I saw a meme about brain injury which used the same analogy, right down to the number seventeen. Maybe that’s why I am weathering recovery so well, I was already like this. I have recently discovered my inner ear is a rather precise barometer, one more thing on my mind as I verify my impression with the readout on my phone.

When I was very young, we had a willow tree in our front yard. In addition to learning one “lesson of the willow,” that it is better to bend rather than to break, I also learned that a willow switch stings more than a belt. Everything has a purpose or two, not all bring wisdom in the same way. In learning the second lesson of the willow, I learned third, that I should not take off with a friend to the ice cream parlor a mile away at five years old. What kind of teacher provides a single lesson? That is lesson number four. It’s an unending cycle, which can be traced back to a willow tree.

I live in a forest, surrounded by teachers and lessons. I remember just about all of them, and their connections form a beautiful matrix upon which hangs the curtain of reality, Maya. I have found that if you don’t recognize the curtain, you can’t look behind it. There is something about having widely disparate bits of information randomly connecting in your mind that either gives you innovative ideas or drives you insane. The trick is recognizing which has taken place. I try to keep an open mind on the subject, it is an exceptionally tight rope.

 

 

Society demands binary responses, so my way of thinking often frustrates others. My ability to determine which ideas are “good” and which are “bad” gets confused as the definitions of good and bad take on a life of their own. I consider ideas that some people would not, either because the idea had not occurred or they immediately dismissed it. I am starting to question why I don’t immediately dismiss ideas, and am only mildly concerned I have found no reasons to do so.

There is a good deal of waviness in my thinking of late, as long as I stay out of trouble I can believe I am still making rational decisions, but I see it in my writing, this article in particular, but also several that I wrote following the TBI.

 

 

 

 

Ten days out

This is me on 12 April 2017, two days after surgery, when my compression bandage was removed.

12 April 2017, bandage removed

It looks severe, and I guess it is, but it wasn’t painful. I’m told I received IV steroids during the procedure, which were supposed to make me feel better. My experiences with IV steroids in the past are radically different, they literally sucked the life out of me when I received them for multiple sclerosis, but I did indeed feel better when I left the hospital this time.

I felt too good in fact. I am supposed to limit myself, some limitations are obvious such as avoiding loud noise (no concerts for two months); some are less obvious, aimed at reducing cranial pressure. I can’t bend over to the point my head is below my heart, I can’t lift more than three kilos, I’m supposed to sleep at a 45 degree angle. I took a lot of scolding to settle myself down.

My symptoms are gone, no bone conduction sounds, no autophony, no pressure in my ear. I’m also less aware of my cognitive deficits, which I knew was a possibility but intend to withhold judgement for a month or two.  I do suddenly have tinnitus (out of curiosity I checked the frequency, ~3000 hertz), but that is an expected post surgery symptom which should resolve itself within a few weeks. My balance is a bit worse, so I’m using a wheelchair for the time being. It is fun, but a bit tiring. I can turn and spin as if I’ve been doing it forever, which should be good news; no dizziness or motion sickness. It has pointed out my only post surgery pain, the point on my left hand in which a catheter was inserted to measure blood pressure. The other catheter, made famous by my friend Barry Parham in his book “Why I Hate Straws,” was just a weird sensation, and I had to eat through straws the first two days.

As days go by there are differences. Not always pleasant but there is no indication they are permanent. The hearing is returning to my right ear incrementally. At first, higher tones came through as if they were transmitted by kazoo, scratchy and fuzzy like the teacher character in Charlie Brown. Today they sound more like whistles. I yawned for the first time about four days post surgery, which was a good sign, I could open my mouth fully, and I was tired. I’ve been sleeping a great deal, probably more than after the brain injury, but back then I couldn’t move much so perhaps I was resting more then. Opening my mouth meant I could try more foods, we found a new Mexican place one night that had wonderful food and great margaritas, ranging up to thirty two ounces. I ordered a smaller one but asked the waitress if I could see the thirty two ounce glass, it was a small fishbowl. I’ll have to visit again when I am fully recovered, they carry my favorite tequila.

We’ve been discussing the question, “Was it brain surgery or ear surgery?” in my SCDS support group. A little of both. The brain needs to be moved out of the way, so even though an otolaryngologist does the diagnosis and sometimes the ear part of the surgery, a neurosurgeon must be part of the team to handle the brain; or in my case, a neurotologist (with a T), which is a new specialty, who handles both parts. The condition of Superior Canal Dehiscence was only identified in 1995, it only affects about one percent of the population, and not everyone requires surgery, so it is rare to find a neurotologist, or even a neurosurgeon/otolaryngologist team, who can properly treat the condition. Some people I have spoken with went a dozen years or more seeking a diagnosis, as most otolaryngologists don’t recognize the condition. It took me four doctors, the second one made the diagnosis and referred me to a team I could not trust, so my fourth happened to be a neurotologist who had just transferred to my hospital from Portland. Perfect timing, his schedule is already filled. I saw him first on 15 March, already had the cat-scan which showed the hole, he said he had 10 April available for surgery so we did the audiograms and VEMP testing the next week. Other folks I have spoken with, searching years and finally getting a diagnosis, were depressed. The surgery is scary, I felt a bit of fear, but nothing was going to stand in the way of a solution.

There was more stress in the intervening weeks than I am accustomed to these days, my landlord lost all vestige of civility and kicked me out of the home where I have lived for four years, and the anesthesiology department demanded a full echo cardiogram a week before surgery because the EKG showed “minimal voltage LVH, may be within normal parameters,” which was difficult to schedule because in their request to my insurance they said “routine health examination” rather than “pre-surgical requirement.” We found a place to stay, moved, and laughed with the echocardiagram technician about healthy my heart is. Plus, just watching the echocardiogram was fascinating. The drain pipe in our new place broke about a week before surgerythe plumber came in while I was in the hospital. Even good news, like my father wanting to come out, caused a little stress because I knew I would be out of it most of the time he was here. At least he was able to see my oldest son while he was here.

My father as I regained consciousness

Sam did a wonderful job of preparation, stocking up on soups and broths and creating healthy food I could ingest through a straw, I was just able to eat solids too fast. She was able to have her father over the night I came home, so he met my father. She scolded me into slowing down, along with members of the SCDS group and some of my friends (special thanks to Vince Coviello, who put it bluntly, “Recovery is not supposed to be exciting. Just suck it up and listen to the Docs!”). Sam made sure the place we live is level, reducing the chance of falls, and has been of constant assistance. I’m going to need to do some exceptionally special things for her when I am fully recovered.

I am getting better. The overlap of symptoms with TBI and MS made me wonder what would change; I am pleased so far and have no doubts about future improvement.

 

Moving on

Flowers between the cobblestones, Gloucester MA 2010

With everything which has taken place this year, from the initial accident, trying to diagnose the myriad of problems which arise from fracturing the various bones of my head and elbow, and having an exceptionally difficult tenant, I have been blessed.

Despite osteoporosis, my bones heal rapidly. Despite the traumatic brain injury, I’ve remained calm and dignified. Despite a constant spinning of my world, wonderful things keep happening. Despite a horrible display of human cruelty, I have seen compassion in unexpected places.

I have been forced from my home, in what can only be described as an insane sequence of events. I do not possess the capacity to understand why this is happening, and have no desire to demonize the parties responsible. I am disabled, a month from a major surgery on my cranium, penniless after a year unemployed, and people I thought were friends have tossed me to the curb; in some ways I am thankful. This crisis has revealed the kindness of others.

My ex-wife was kind enough to take some furniture I would be unable to move. Other friends, including people I only know on line have helped. One woman, who I had never met in person and who has differing political views (she attended the Women’s March in Washington) provided her mini-van for a morning, and not only provided transportation, she helped move things. I learned a good deal about her during this time, and am quite pleased to call her my friend. It took a bit to process what had happened, and I found myself shaking.

Liz is a Democrat, who distinguishes herself with her recognition of “limousine liberals.” She doesn’t talk about people in need as she drives by, she stops and helps. This Vassar educated mother of three (two on the autism spectrum) spent her morning helping a conservative punker. Okay, neither of us fit the expectations of those descriptions, which is in many ways the point. Labels are irrelevant, souls are what matters.

We spoke about our experiences, she has children in the Princeton Charter School, which the Princeton Public Schools have declared the competition; and in what I have come to believe is a typical Princeton response the Public School Board is more interested in destroying the Charter school than improving their own students. I saw this trait expressed in a variety of issues in Princeton, ad hominem attacks rather than displays of any measure of superiority. Liz continues to attempt to bridge the divide, hosting meetings of both sides, opening her home (and sledding run) to everyone. We mourned the death of civil discourse, and although we differ in our beliefs of the cause, we share the loss of meaningful debates, recognizing the next step is authoritarianism.

Liz is what I had expected Princetonians to to be when I arrived (shortly after the picture up top was taken). Intelligent, well spoken, and civil. It took six years to find a person fitting that description, and I met her on my way out of town. My experience of Princeton was elitists, posers, and hypocrites. It is very reassuring to know people such as Liz exist in the wasteland of Princeton, reviving my faith in humanity; in a world as torn as ours is, there are still flowers growing between the cobblestones.

This month I have seen some of the best in people, and some of the worst. Life is always about balance. There is something important in there, as I configure what is left of my brain and work through increasing vestibular issues. The rose coloured glasses present an illusion, however the world is not filled with assholes clinging to hatred. There are people like Liz and I, not many, but perhaps enough to turn the tide. Perhaps, although I will never know the outcome. We accept the future is not predestined, rather it is malleable, to be improved with actions rather than curses. The core of meaningful conversations is mutual respect, the absence of respect begets rage, which I believe we can all agree is our present position. The world needs meaningful conversations, which should lead to people who will take actions rather than consider themselves virtuous because they are aware of the issue and have appropriately rebuked those who are not wearing the right colour ribbon. Hope lies in lifting each other up, not in putting each other down. Humans need hope.

There will always be the trolls, and it is altogether possible they will be the majority of the population. I may have thrown away my rose coloured glasses, but I will always believe that love outweighs hate, that one good person is more significant than one hundred bad people. They can destroy a person, but ideas live forever.

Save

Man of mystery

From what I hear, I am improving rapidly. I don’t see the improvements themselves, but I see the results of the improvements. I have learned a good deal through this brain injury, one more counter intuitive duality of TBI.

I am more thoughtful, slowly forming opinions about everything. Being less sure of reality has benefits. I am not certain of my own history, so I am a man of mystery to myself. I have far more memories than should fit into a normal life, but most of them suggest my life was anything but normal. The ones I can verify are less concrete than the ones I cannot, so I lean toward believing all of them. My sense of caution tells me not to discuss a past I cannot verify, so for the most part I’m sticking with my cover story.

I know I am impaired, but impairment is relative. I would ever so much like to accept my present condition, there is no reason to believe I will be who I once was (whoever that may be), and frustration over my loss is allegedly  detrimental to progress. Of late my frustration has been over recognizing my disability. I am better than I was a few months ago, I may be better than the average person, but I am still not functioning as I once did, so people who expect that level of performance become frustrated with me, and in turn I become frustrated. I am the one with the brain injury, yet I am the one who is supposed to be understanding of others.

I received a letter from Social Security telling me I have been approved for Disability payments. Page two lists the amount of the past due payments, and the percentage that will be paid to my attorney. Page six states I have no past due benefits. I called the attorney for clarification, but they had not received the letter. I emailed a copy of the letter, and their response was “You have been approved for disability.” I knew that. No response to my question about past due benefits. But I’m the one with the brain injury. Apparently they finally received the letter, and I received a letter from the attorney, which included “I feel you should have received your past due benefits by now, if you have not, please contact the office.”  I contacted the office again, and was told I have been approved for disability payments and the letter from the attorney was a form letter. Thank you for keeping me in the loop. But I’m the one with the brain injury and all these wacky ideas about proper communication.

I feel compelled to meet new people, but my old habits of closing bars do not fit my current abilities. I can still drink more than the average American, but even sober I am uncomfortable driving in the dark. At Samantha’s suggestion, I have become involved in a couple of “Meetup” groups, and created a profile on OKCupid. A friend, who “tunes” dating profiles professionally asked if I was ready to date. I had not given it a thought, so I guess the fearlessness is returning, I may be the only person who values that return. I’m ready to be rejected again, and opening more of myself to attack. In one of my Meetup groups, “Beer Fridays,” I met a woman who does not drink beer. She wasn’t sure what the group was about. But I’m the one with the brain injury.

I have noticed a peculiar group developing. There is a small number of people who wish to overthrow the recent election. At first I thought they were Democrats, but I have friends who are Democrats, and these folks have little in common with polite society. A few of them have asked to be friends, which at first I found admirable. My heart remains open, I still enjoy intelligent discussion with those of opposing views. Apparently, I’m pretty gullible, they had no interest in conversation, only in someone to spew their hatred towards. Their aims seem to aligned with Daesh, the Intel specialist in me is a bit alarmed. I hope they learned, from my polite goodbyes, that grace is an admirable quality, but I strongly doubt it. This is one in which I can say “Yes, you do have a brain injury. Be careful, the world is not filled with nice people.”

Today, my Tecfidera, the medicine I take for Multiple Sclerosis, was delivered four days late, by United Parcel Service. My door is not easy to find, but that was not the problem as the driver left notes on my door. Right under the heavy knocker which he must have thought was ornamental, and across from the doorbell which eluded him. I’ve worked around UPS drivers in the past and know to require a signature on deliveries, their “loss” rate is phenomenal. I saw the truck pulling away, and went out to find another note. No contact information on the note, they really don’t want you to call. Sam found a way to contact them, and they sent him back; she went to the door when I saw the truck pulling in. He said to her “Well, if you’re going to have an attitude, I won’t deliver here anymore.” I cannot imagine why I was charged extra to have a driver come to my door and insult me, apparently that is the point of the notes, to avoid the driver. I know these drivers are under immense pressure, I saw one crack over a wrong address when I worked at the Police Station. This incident was inexcusable. I got a call from the local office wondering why I didn’t just go to their office and pick the package up. Apparently they only drive the trucks around as advertising. They said they would talk to the driver and get back to me. In the 90s I watched a driver walk through security at a UPS hub smoking a joint, the security guard just said “you’re not supposed to smoke in here.” You were not supposed to smoke in the entire multi building facility, and they allegedly had routine drug tests.  I will be specifying FedEx for future deliveries, and will lobby to drop UPS from the preferred carriers list, but I’m just an unreasonable crank. That guy with the brain injury.

Part of the difficulty in finding who I am is discovering what planet I am on. I have memories of a place where people strove to communicate with each other. It would be easy, and from what I have read from other TBI survivors quite common, to feel alienated. I am either an alien or severely confused about proper behavior, are these memories of a civil society false? When I was told that people with brain injuries often are irritable and cranky, I thought it was frustration about inabilities. Then I thought it was from frustration about the processes we have to go through, with a brain injury, to be accepted as having a disability. At this point, as I become increasingly irritable and cranky, I can see it is due to frustration about the inabilities of the world in general.

I have a brain injury, and am keenly aware of my impairments. I may even overcompensate in order to appear “normal.” The more I interact with people, the more I realize I’m trying too hard. “Normal” is nothing to be proud of. I am a stranger to this world, and rather happy to discover that fact. It is kind of cool being a Man of Mystery.

Flowers

Some memories are fluid, untrustworthy as they embellish themselves. Some are burned into my soul, so even as they hold beautiful moments, they are solid, comforting in their details. As time has passed this last year, some memories have been lost, and some have resurfaced, bringing me to tears. This is one which touched me deeply.

The memory is of tomorrow’s date, 20 November, in the year 1998. I had just turned forty and ended a relationship. The week prior, on my birthday, I had stopped by Chaddsford Winery, where I had worked for a few years and was part of the family. I had just had my tragus pierced, and was in a very good mood. My friend Suzanne said “You must have found a new love, you’re glowing,” to which I replied “Nope, no relationships, I’m taking a break,” much to the shock of the table. I had a well earned reputation as a ladies man, my friend Pete once exclaimed so loud my date heard him, “Where do you find these women?” I told her he was complimenting us both.

The memory of 20 November was inspired more by some flowers than the calendar, more on that later.

There was an event coming up at the winery, a Nouveau tasting, and I needed an escort. I found this ad in the paper.

Emma's personal ad

Emma’s personal ad

This was a world before the internet, with personal ads in newspapers and conversations by telephone. We eliminated the goal of “lifelong partner,” her husky voice informing me that there were two things I needed to know about her, she was Sicilian and she smoked. Ironically, I was with her for the remainder of her life.

I picked her up at her apartment, she didn’t want me to come to her door due to her dog, a two hundred pound Rottweiler. As I waited in the car she came out and first approached another car, she later told me she had asked if he was Blake and he had said “I sure wish I was.”

I drove us to the winery, there was a light rain. As we approached I told her I knew an alternate entrance, through an open park behind the winery. It had not occurred to me how strange it would be to drive off the road and through the woods with someone I had just met in person, later she told me her hand had been on the door handle the entire time.

We had a lovely evening, I’m fairly sure she was impressed with the way we were treated by Eric and Lee, the owners. We were kissing quite a bit in the barrel room and she suggested we continue at my place. I did not need to be asked twice. When we reached my room in South Philadelphia, a “trinity” with a winding staircase, she looked around and said “This won’t do at all” quite severely. I wasn’t sure what she meant, until she continued “You’ll have to move into my place.” I had been in her presence for about three hours, but had no reason to argue. I went down to the kitchen to get some food, and returned to find her on my bed in a lovely corset. At some point we slept, we awoke intertwined.

I drove her to a little pancake house near her place for breakfast. I had Belgian waffles, then I dropped her off and went to my weekend job at a florist North of Philadelphia. When I arrived at work my friend Beverly picked up my vibe and was ecstatic for me, preparing a bouquet for my new date that evening with Emma. Emma brought her handcuffs. It took almost a week to move into her place in Delaware county.

Now the flowers.

About a month later we traveled to Bloomsburg Pennsylvania to see my oldest son Leyland in a “A Christmas Carol.” The next morning she suggested we “stop by” and visit her friends Catherine and Bill in Staten Island. She never was much for directions, but my ex-wife had been rather rude the night before (she was under the impression I was coming to see her) so I was seeking a way to sooth her.

We finally located Catherine and Bill after dark, and had quite a bit to drink with them. At one point Catherine reached over and broke a piece off of a plant about six inches long, telling Emma it would root if she just stuck it in some dirt. Last month, eighteen years later, that plant finally died. It had flourished, and had been shared with several friends through the years. It is called “Crown of Thorns” and produces small pink flowers. At least ours did, no one else ever saw them, and Emma felt she had an intimate relationship with the plant, which was producing the flowers just for her.

When Emma was in the hospital, just a few days before her death, some friends brought a plant. It had a much thinker trunk, but it was the same species, Crown of Thorns. I have had that plant for just over six years now, and the other day it produced flowers for the first time. I was so excited Sam heard me in the other room. These flowers are white, but apparently there were pink ones previously, the petals remain nearby.

new flowers

new flowers

These flowers remind me of the entire story. So far the majority of my rediscovered memories have been pleasant, I always had trouble remembering bad times. I know Emma and I had disagreements, but we usually ended up laughing, like when she threw a spoon at me and it bounced off my head and embedded into the ceiling.

I worry sometimes that I dwell on Emma. Right now exploring memories feels safe, I don’t focus on a single moment and repeat it, I just have a wealth of pleasant moments with Emma. I have no desire to live in the past, I’m just glad I remember it.

 

Real World Problems

I have been attempting to put my personal issues into perspective, recognizing that my impairment is not the end of the world. In the meantime, the world ended.

I was once a fairly sharp analyst, at least two sets of memories indicate this to be true. One of the main reasons I had wanted to emigrate to Belgium was to miss the presidential election in America. As it worked out, the woman who left me behind returned in time to vote with her fresh citizenship. Had I been with her perhaps she would have stayed in Belgium, the equation is too difficult to approach.

So here I am, unable to endorse either major party candidate. I would like to make a change in our lexicon, changing the word “vote” to “endorse.” I suspect people would have an easier time accepting their role in the process if they realized the position was not solely their decision. My personal choice was Gary Johnson, the Libertarian candidate, largely because I overestimated the American voters, and thought all the folks who were upset about Bernie Sanders being cheated out of the Democratic nomination would actually vote for a third party candidate like they said they would. All that would have been required would have been for a third party to receive 5% of the vote, but that did not happen. They were all demanding honesty but couldn’t come up with any of their own.

Wednesday morning I woke to the news Trump had won, I had pretty much figured it out before I googled for the results, there was no “We Won!” fanfare from the liberals. I also had some messages from Belgium, one right wing politician was rather snippy about me and “my kind,” had I been in Belgium she might have figured out who me and my kind are. I was called a racist and a homophobe before I left for therapy, and couldn’t bear the wailing and gnashing of teeth on the radio so I put on something more comforting. I found that the bass tones on Courtney Love’s album “Live Through This” match my hearing disturbance and were quite soothing at high volume. “Asking For It” almost put me to sleep.

So there I am, at the Brain Trauma unit, and of course the elephant in the room was unavoidable. We work on mindfulness and cognitive therapies, ignoring reality is frowned upon. As I spoke with my therapists and other patients, I heard the phrase “You’re the most sensible person I’ve heard from all day” a couple of times. I have come to expect it from the other patients, coming from a therapist it was a bit unusual. Me, the guy with a brain injury, was the most sensible person she had heard from all day.

I remain impaired, plagued with neural fatigue after something as simple as a Lumosity session, as well as losses in processing speed and memory. I have regained my sense of humor, and the bloodwork indicates my hormones are once again balanced, but there has been no physical or emotional confirmation. I consider myself “better” because I can recognize I am unemployable. My neuro-psychologist says that high functioning brain injury survivors take the most therapy, because we have so much difficulty accepting our limitations. I understand, that is to say I know what is holding me back, and for the first time in my life I can’t conquer it. The astrategies which worked in the past, denial, working through pain, only make the problems worse and slows any actual recovery. Punching my way out only leaves me with bloody knuckles.

I can’t really ponder my future, fortunately I don’t care. I know I can’t sustain my lifestyle, I can’t even manage to make it to my friend’s gigs; last week I couldn’t accomplish a day trip to see the “Monkeemobile” at a local shop. I feel more isolated, but the physical isolation doesn’t trouble me. The mental isolation does, if you will excuse the comment I feel like the smartest kid on the short bus. It is all perspective. I do not expect to be taken seriously, I expect that anything controversial I say will be responded to with “Well you know, he has brain damage.”

In a society which so easily dismisses complaints as “first world problems” I try to point out the human element, the issues we all face. The turbulence following the election shows us pervasive arrogance and violence, which are real world problems, reaching across all social and economic barriers. The people claiming to be intellectually superior were suddenly made aware of the electoral college, one person standing on her degree in history claiming it had only been used five times previously (she did not realize it has been the method of election in all of the sixty previous elections, yet considers herself politically informed). I live in the Northeast, every year people forget how to deal with snow, I suspect some forget what snow is. After a lifetime of ambiguous sexuality and taunts of “faggot,” I was called a homophobe because I didn’t vote for Hillary. The problem is a failure of perspective, people who protest in the name of tolerance acting with no tolerance. It would be easy to blame this on a lack of education, but most of these people will tell you how educated they are, largely because they never bothered with the definition of education. To them it means they attended a particular institution, not that they learned anything useful. Someone told them they were educated, they never realized that the truly educated never stop learning.  They feel they are compassionate because they have seen compassionate people and it made them feel good, as they drove past. I cannot argue with such arrogance, it would be the equivalent of trying to convince a crazy person they were not sane.

I recognize I am probably not completely sane. Which in a counter intuitive way validates my sanity. I listen to people who do not listen to themselves. I guess I’m asking for it.

 

 

 

Running on Empty

I believe I have always been a gentleman, as well as a gentle man. That may be nearing an end. I am increasingly frustrated and irritable. I am not happy with the person I am becoming, but I see no way out, and I am looking hard.

I pictured it last night as a four engine aircraft running on three engines. Looks easy, but that is not how it was designed, that fourth engine had a purpose. The twin engines are fine with only two engines, there are plenty of single engine craft and helicopters. I should be happy with three engines, but I know I used to have four.

I attended a gathering last night, my big night out this week, and ran into someone I saw a few months ago. He remembered my name, we had met at a gathering of a related group which had been both of our first group forays. Of course I didn’t remember his name, and probably wouldn’t have without the injury. I was never good at names. After a while something happened which caused Sam to mention my brain injury, and he said “But you look okay.”

Yes, I look okay. Because what is wrong is something you cannot see. I falter, walk with a cane, am hard of hearing, can’t see very well, but those issues are common in people of my age. I have adapted. I smile, ask people to repeat what they have said or to speak more slowly, I have a beautiful cane, I connect abstract ideas on occasion, I dress well, I fit in. I can remember trivial events, which covers for the fact I forget what I am saying mid sentence. Writing does the same, you don’t stop every few words as you read this, you don’t know how much I struggle with each sentence.

A relative called the other night. I suspect he meant well, but there is enough of me left to feel critical of his aloofness. I can remember telling him about what I am doing, he acted as if he did not. He made some insulting comments, which I am sure he did not realize were insulting. When Emma was fighting cancer, another relative felt the need to casually insult the profession of restaurant server. When I reminded him that Emma had been a server most of her career, he doubled down, directly insulting my dying wife. Both of these people are related to me, not many of my close friends can believe it. I wanted to hang up, but I am too nice. I shook until I fell asleep, and slept poorly. The next morning when I could collect my thoughts I wrote him an email, explaining the pain he had caused. I knew better, nothing was going to change. He wrote back, I couldn’t bring myself to read his email. I asked Sam to read it, just to tell me if there were any questions to which I should respond. She said it wasn’t as bad as she thought it would be, but she hadn’t read my letter to him, so I let her read the email I had written. Her opinion changed, so I am glad I did not read his email. My words did not merit his response, which I had expected. This has nothing to do with my injury, it’s just a reminder of a disappointing relationship at time I need a more supportive one.

There are these kind of issues, the untangling of issues. I run into it with physicians, who try to separate my multiple sclerosis, traumatic brain injury, and advancing age rather than just treating the symptoms.  Insurance is even more frustrating, because it’s just a faceless voice on the telephone, giving their personal interpretation; if I call back I get another faceless voice with their own interpretation. Social Security Disability is scary, because from what I can gather it is a monolith, the unimpeachable opinion of one person determining my future, and that person has no medical training upon which to form this opinion. Personal interactions are the worst, everyone intends empathy, and I can finally understand the meaning of “You don’t know how I feel.” Depression is present, but I actually have brain damage. I can’t just think of things another way. I want to be gracious, but I don’t believe I can keep up the facade much longer. I don’t know how well I’ve kept it up so far, people have been falling away from me, no one has visited, I have received very little support from my fundraising attempts.

A few years ago, I visited Lieve’s brother in Belgium. She was never precise about his disability, but he was in his forties, living in an institution, wheelchair bound. He cannot speak, but he recognized me from a previous visit. We all had lunch in the day room, with the other patients. This was a residential care facility, there were no white coats, and most interactions were in Flemish. An hour or so in, I realized I could not tell the patients from the staff, and they probably felt the same of me. I was pleasant, attentive, but my English just sounded like gibberish, my Flemish was broken. I feel the same now, my adaptations and eloquence make me appear to be “normal,” I carry no physical scars, I look okay, but I am not.

I am scared. Not as much by my crumbling finances as my crumbling brain. I may end up homeless, if things continue the way they are certainly by this time next year, perhaps much sooner. I had once thought losing one’s mind would be peaceful, a gentle descent into forgetfulness. Sad that one of the last things I am to learn is the solitude of a broken mind.

 

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I always thought of myself as a warrior. I’m losing this battle.

 

 

 

 

 

Bits and pieces

You have heard the phrase, “One step forward, two steps back.” It is easy to picture in a two dimensional sense, but brain injury develops in a four dimensional matrix. My memory shows a glimpse of the past and I can’t process information as well, my balance improves but I can’t hear. My processing improves but my eyes can’t focus. Last week on the way to rehab, I heard a story on the radio about Pennsylvania, and my old drivers license number popped into my head. 20 329 373. Not many people know their current drivers license number, I haven’t driven in Pennsylvania since 1999. Later, at rehab, I scored lower in processing speed and attention than previously. I wrote a paragraph for my speech therapist in which I did not cover the issues of the assignment, but she went out of her way to say how well written it was. One step forward, one step down, one step sideways.

Today, 28 October 2016, would be Emma’s sixtieth birthday. I know what we went through together, I’ve read her original blog and the book I wrote, I can remember little things about her, the way she pursed her lips when she was excited, the way she quit smoking in one second, the way she let go of everything except my hand. I know but do not remember that I cried most of January over her, suddenly lost in loss again.

2004 at the Alamo.

2004 at the Alamo.

I can see her at sixty, having survived cancer, strong and defiant. I like to think she wouldn’t dye her hair, the grey looked rather nice on her, she would have bounced back from the damage of cancer. I try to imagine I will bounce back from this injury, what life would be like together again. I recognized this morning that in April this year I went to Record Store Day, standing in the cold for hours to get the release of a picture disc of David Bowie’s “Wild is the Wind,” her favorite Bowie song. Sam tells me I was still fairly oblivious back then, although I was living pretty much independently and had driven to New Providence to do some yard work with my shattered arm for a deceased friend’s mother. This was when I didn’t know how badly my brain was injured, I was worse because I felt better than I actually was.

 

 

I have little emotion of late, but I woke in the middle of the night thinking of Emma, and realized I was crying. The tears running down the side of my face gave it away.

Regaining my emotions may be a double edged sword, I so want to feel, but I know it will be beyond control. I see other people in my rehab who are irritable and angry, which I hear is the norm for people with brain injuries. I see all the anger in the world today and I want no part of it. I know I need to be upset with my financial situation, at very least I am too broke now to make irresponsible impulse purchases. I am making attempts to raise some money by begging, Emma would never approve. I don’t either, but there are no other options.

I had a doctor’s appointment this week, I know because there was a message on my answering machine. I assumed it would be on my calendar so I erased the message. It wasn’t on my calendar. The name on the caller ID was a neurologist, and I have no memory of making an appointment with a different neurologist, I know I made an appointment with a gastroenterologist. I have no idea which gastroenterologist I made an appointment with, and there is nothing on my calendar, so I guess I’ll start from scratch. Hard to explain how I feel on missing the colonoscopy I’ve been putting off for eight years, I am disappointed because I finally got around to making an appointment, but on the other hand, I am not excited about a colonoscopy in any way.

Bits and pieces flow in and out. One exercise I had in cognitive therapy was tracking random numbers floating on a screen and add them together. Life mirrors therapy, I could handle five numbers, and sums less than forty. After that it was more than I could handle.

I recall when I was a technician, my manager could not fathom how I managed to travel from point to point in such short time, once describing my velocity as “low Earth orbit.” I loved driving, the highway like a river, the cars flotsam and jetsam. I knew what everyone was going to do, I could tell the blue car three cars ahead on the right was going to make a left turn at the signal ahead, so I would change lanes not to be behind the people slamming on their brakes to avoid him. The red car three back to the left was going to accelerate and pull into my lane, so I would speed up a touch and let him fall in behind me. I floated down the road, rarely touching the brakes. Today I am able to recognize how many judgements were being made, quickly and seamlessly. I recognize it because I am unable to accomplish it, I know why I can’t, there is no compensation for my present state, and probably never will be. I’ll never be forty years old again either.

Much of my therapy is not what most people consider therapy. We’re not trying to return to where I was, we’re trying to compensate as much as possible, and to accept who I am. There is some mourning for who I was, but if my focus will be on surviving, which Emma inspired in every way, I have to accept who I am today.