I always have found the bright side of any situation. I learned things I would never have had the opportunity to when I spent some time in Prison. I was fascinated by the technology involved with oncology when Emma had cancer. My Traumatic Brain Injury has provided more insight into “Medicine,” Rehabilitation, Mental Health care, and aspects of society of which I was previously unaware.
There have certainly been things which I see as benefits. While I would never suggest that crushing your skull is something everyone should try, a TBI is not universally negative.
Frustration is so normal in TBI patients that the resulting anger is an expected symptom. I was never frustrated; I was depressed, but never felt there was nothing I could do. Instead of anger towards my changing conditions, I felt curiosity. I was exploring the “new” me. It helped a great deal with the transformation. Rather than wasting time in frustration over what I could not do, I was busy finding out what I could do.
One thing I learned from Emma’s Cancer journey was the importance of an advocate. Sam was my advocate in the months following the accident. She coordinated my benefits and assistance.
When my physical therapists told me I would be lucky to get a thirty degree extension of my arm, I did not set that as a limit, I did not aim for thirty degrees. When I reached zero degrees most of the therapists could not do the same. When I reached minus five degrees (hyper-extension according to the books) no one could. It felt good to do what doctors had said I could never do.
When the otolaryngologist told me my hearing was fine, I sought out another, who was able to diagnose the Superior Canal Dehiscence which had occurred when my skull was crushed. I found a surgeon I trusted to cut into my head and now my hearing is fine.
When the ophthalmologists could not understand that my eyes were not on the same plane, I saw a neuro-opthalmologist who prescribed lenses with prisms and tints (which I could not afford). Fortunately, vision therapy corrected my vision.
The mental fog and slowed processing speed has taken the longest to clear. I am probably as recovered as I am going to get, but that is not stopping me from exercising my brain as much as possible. A month ago I was not writing at all, since 1 January I have been writing close to twice a week. I have had no return of my abilities to play most instruments, but I can drum, well. I cooked last week for the first time in years. I’ve started collecting firearms and reloading shells; I’ve been to the range a couple of times and still can’t carve out the bullseye, but it gives me a goal to work towards. And, dating has become interesting again; as I feel better about myself, other people see me differently.
The accident was the result of my fall down some hazardous steps. I had mentioned the state of the steps, and requested a handrail, a couple of times before the accident. Following the accident the owners denied they had ever heard anything about the steps being hazardous, and had no intention, even after my fall, of installing a handrail. That was sufficient for me to file a suit for negligence, which I won quickly. The amount of the settlement was adequate to reverse my losses of the previous years, allowing Sam and I to purchase a condominium and live comfortably.
Due to the damage I sustained, I qualified for SSDI. I will never have to work again, which has reduced my stress level, which in turn assisted my recovery. Getting handicapped parking also made life easier.
I am calmer, much more understanding than I was before. One exception is truly stupid people, of whom I am less tolerant than before. By “truly stupid,” I mean people who choose to not know things. As with the incident at the Lincoln Memorial, it is understandable to be misled by false media reports, but several days after the truth is revealed you are truly stupid if you think the kids were racists and attacked the Native American.
The therapy I received helped me see that an actual “recovery,” in the sense I would be the same person I was before the accident, is impossible. We all change a little every day, I am not the person I was five years ago, nor are you. We just don’t notice when the changes appear over time. I woke up in the hospital and felt I had aged twenty years. I had, because I was able to exist as a thirty something, and now I was my age. Most people face the reality that they are no longer the football hero or cheerleader they were in younger days, I had to face the reality that I am mortal, because I had never “aged” before.
Admittedly, I am doing much better than most TBI patients with my level of injury after three years. I am doing better than most Multiple Sclerosis patients thirty years after diagnosis. All my life has been fortunate, including Sam finding me in the mudroom, where I would have bled to death by myself. This I place as a result of my relationship with God. Little tiny coincidences have made my life fascinating for sixty years, and I don’t believe in coincidences.
Three years after the accident, I appear normal to most folks. Because I am. I am not the whiz kid with all the answers, but “normal” was a pretty low bar to reach. Another couple of years and I might make it to “above normal,” but for now I am content.