A new window

I may have mentioned having some hearing issues since the accident.

I have now visited four otolaryngologists, in an attempt to diagnose and correct the problem. Well, two to diagnose, then two more to find someone I trust to perform the surgical correction.

The first otolaryngologist gave me a hearing test, which returned results consistent with an aging punk rocker. My attempts to explain my experience was not adequate to pull his eyes away from my chart, even though he did conduct the one tell tale office exam that should have pointed him in the right direction. He offered to write a prescription for hearing aids, even when it was evident they would not correct the problem.

The problem, you see, is that I hear too much. There is a “fullness” in my right ear, much like the pressure you feel when changing altitude, except swallowing doesn’t clear it. I hear my heart beat in my right ear from the time I sit up in the morning. The shower hitting my spine is deafening. My voice has a bass resonance in my right ear. Sound builds, so in a short time all I hear is the resonance (autophony). These sounds are heard through bone conduction, which is why I hear them and you don’t. Normal people hear sounds conducted through air, and entering the ears.

The test the first otolaryngologist performed that should have pointed him in the right direction was placing a tuning fork on my skull, then holding it over my ear. I could not hear the tone in my right ear, but it was loud and clear when the fork was placed on my skull. Opposite results for the left ear. So he suggested a hearing aid, and I suggested a different doctor.

Doctor number two recognized the symptoms right away. He called it “a third window,” a reference to an extra opening in the Superior Canal of the vestibular system, which is attached to the cochlea. The medical name for the condition is Superior Canal Dehiscence, or Superior Semicircular Canal Dehiscence, Syndrome (SCDS or SSCDS). I’ve learned lots of new words, but I’m still not sure about the pronunciation of “dehiscence.” As you can see from the CT image below, and probably guessed from the explanation, corrective surgery takes place within the cranium. The canal is a bony structure adjacent to the temporal bone, on the “in” side. A hole is drilled for access.

 

The third window

The “third window”

 

Doctor number two could not perform the surgery, and referred me to a specialist at the University Hospital in Newark, NJ. This doctor did more tests and did a CT scan of my temporal bone. She definitively diagnosed the SCD, but was so disorganized and scattered I wouldn’t trust her to open a can of tuna, much less my cranium. I remembered my neuro surgeon from the accident, and contacted her. She referred me to doctor number four.

Doctor number four is Dr. P. Ashley Wackym. I have seen a few dozen doctors in the last year alone, he is the first to impress me. Alright, he has a lead initial, so there is a sense of kinship, and he dresses well, a nice suit and sharp shoes; but what blew me away is that I did not have to explain my symptoms, he asked me about each of them with familiarity. Another thing which gave me an odd comfort is that many of the symptoms of my TBI are also symptoms of SCD, in other words, correcting the SCD may assist with the issues I am working on with the TBI. Wouldn’t that be lovely?

From what I have read, SCDS is very rare. This may be because it was only identified in 1995 at Johns Hopkins. An estimated one percent of the population has the dehiscence, and many do not develop into the syndrome. Not every doctor knows it even exists. Severity varies, and in the big picture my case is not serious compared to patients who cannot stand because their balance is impaired beyond therapeutic correction. I just have so much annoyance with my hearing that I would be most comfortable as a hermit. I am frustrated because going to hear a band requires a day of rest before and after. I have considered putting a spike in my ear to relieve the pressure, but other than that my life is not in danger. When I was diagnosed with multiple sclerosis it was relatively rare, largely because diagnosis was so difficult. With the advent of better diagnostic tools, we hear about people with multiple sclerosis every day. I knew a woman diagnosed at the same time as I, who had been searching for fourteen years, trying to maintain a grip on her sanity. The stories I hear from other SCDS patients are much the same.

I look forward to the surgery for a variety of reasons. An end to the noise will be wonderful, and the experience should be fascinating. I will spend two days in the hospital and recover at home for six weeks, and I’ll probably have a scar on the side of my head which will alter my choices of hair styles. Maybe it won’t work, I could lose my hearing completely (which would not be terrible if the autophony goes away), it could simply not work, or any of the myriad of surgical complications could happen. Anything could happen with the surgery, without it one thing is certain, the noise will continue until I lose my sanity and find a window large enough to leap from.

 

Blinded by Science

 

I have something of a love/hate relationship with “Science.” My father would be considered a scientist today, he has a degree in chemistry, and actually worked as a chemist for a few years before applying his degree towards the sale of devices to measure chemical processes. This is the “Science” I grew to love, every evening there was likely to be at least one discussion about science and its applications, they might relate to the preparation of dinner, the PH balance of the pool, the earthquake we experienced the night before, the latest gas chromatograph or liquid scintillation counter his company had produced or the most recent space launch. I remember being yelled at about a few projects I had devised with my chemistry set, a part of me chuckled when he would say “Don’t you realize what could happen” because I did, that was the purpose of the project. Back then, a scientist performed research.

Science made sense. It was rational. It didn’t care how you felt about it.

As an adolescent, “Science” became popular with society. Quotation marks science, just the word, not the method. With total disregard for the scientific method, the word “science” was bandied about as if it were some deity. In many cases, it was, as people made thoroughly misinformed statements about a conflict between God and Science. This is where my hatred was formed. An individual who understands neither God nor Science claims they are in conflict. Were it one person the data would be anecdotal, but it was common. This is the beauty of science, you can reproduce the experiment yourself. Ask a dozen atheists about a conflict between science and God, they will demonstrate an ignorance of both, regardless of the God in question. Well, perhaps not in the case of the Church of the Flying Spaghetti Monster, but any religion based on historical texts. The most frequent error is assuming a religious text is a science book, then pointing out differences in language. Assuming every follower of a religion interprets the texts precisely in the way the atheist interprets what he’s heard about it is also quite common.

As common meanings continued to be discarded, everyone became a scientist. Typically the credentials these scientists hold is having read an article about an interpretation of an abstract. In an impending “Scientists March on Washington” everyone is included in the name of diversity, it’s not even being called a “Scientists March” anymore, within days it became “The March for Science.” It was no longer about science, it was about “Science” advocacy, which means whatever you want it to mean. I received this message before dropping out:

“We are taking seriously the many important criticisms regarding (lack of) diversity on social media stating that for this march to be meaningful, we must centralize diversity of the march’s organizers (both in leadership positions and at all levels of planning), speakers, and issues addressed as a principal objective for the march. We hear you, we thank you for your criticism. In the March for Science, we are committed to centralizing, highlighting, standing in solidarity with, and acting as accomplices with African American, Latinx, API, indigenous, Muslim, Jewish, women, people with disabilities, poor, gay, lesbian, bisexual, queer, trans, non-binary, agender, and intersex scientists and science advocates.

-March for Science Diversity Team”

I’m not quite sure what “Centralized Diversity” is, I had heard enough doublespeak to know better than to pose a question. Which is, of course, the reason for throwing around the word “science.” To silence opposing viewpoints. To enhance the self described “intelligence” of the speaker. No doubt it works with large groups of people. You have heard someone say about anthropogenic global warming “The science is settled.” Science is never settled. Anyone who tells you it is does not understand the scientific method. Science is about excellence, not diversity. You do not know who George Washington Carver was because of the color of his skin, or Marie Curie because of her gender.You know them because they performed revolutionary experiments, verified their results, and then communicated the reproducible results.

So it is a Brave New World. I’m thinking it’s more of an Animal Farm, the porcine population seems unusually prominent. I am fortunate in that part of my therapy is recognizing things won’t be like they used to be,  but it is supposed to be me that is different.

We made such complicated things look so simple, we forgot how hard it was to get here. Everyone was not just equally important, they were special. Everyone might be unique, but they cannot be special, superior to each other, and still equal. The next step is even more bizarre, everyone else is stupid. I’m not sure how these folks celebrate diversity when they truly believe people who do not share their views are not just misinformed, they are mentally deficient. This would give me a headache even if I didn’t already have a brain injury. The generalities and exclusive inclusion suggests a logic most often found in asylums.

You will see a March for Science, they’ve already ordered merchandise for the selfie crowd. Suggested speakers include Alan Alda, whose television commercial mocking actors as doctors should be force fed to the organizers of the march a la “A Clockwork Orange.” Other pop-science advocates have been suggested, Bill Nye and Richard Dawkins among them, and Neil deGrasse Tyson surely won’t miss an opportunity to be on camera. Sir Magnus Pyke would have been excellent, but as an actual scientist I suspect he would have declined. What you will not see is a march of people who are scientists, or have any idea of the components of the scientific method. It will be a March for Obfuscation, quite the opposite of the original intent.

I had hoped, out of naivete, to actually advocate for Science, perhaps help lead people to an understanding of why the method has been revered since the seventeenth century. Perhaps the realization that we have arrived at the tower of Babel is the most depressing thing I have learned in all of this.

 

 

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Here’s the right way to do it partners!