Like that first step, there are first words. Another stumbling block.
You have probably been in the situation in which you try to explain something to someone who, for whatever reason, simply does not understand what you are saying. Communication is possible because we share a definition of the words we use. Telling someone something is beautiful is meaningless if by “Beautiful” you mean “green,” unless they also define “beautiful” as “green.”
I find that certain words have different meanings to me now than they used to. “Remember” is one of them. My memory is a collection of moments. I have always known my approach is different from that of other people, and from what I hear in therapy my “problem” is that my memory is now “normal.”
When I was teaching aircraft identification in the Air Force, I taught my form of memory. An aircraft is not just a list of features, it is an object. If you remember the object you can mentally walk around it and identify the features. This just seemed obvious to me. I have retained memories of childhood because they were events, one in particular, a motorcycle when I was four years old, moving from Corsicana Texas to Dallas. A young man had come over to say goodbye and was giving people rides on his motorcycle. It was a cold day, I can smell the exhaust and hear the engine. I have several similar memories from Corsicana, a toy, a party, a girl (wouldn’t you know, even at four).
Now my memories are mere recollections, I am aware something happened, but I have no sense of participating. I have the script, but not the experience. The clearest example is painting my bedroom last February. I know the room has been painted. I know I painted it. I know Sam and I went to Home Depot to buy the supplies. But I have no sense of actually doing any of these things, no memory of smelling the paint or holding the brush. I am aware that at the time my arm was so injured I could not move it, so I must have painted left handed. But no memory of left handed painting. No visions of paint covering the wall or dripping on the floor. I can imagine my personality telling Sam she wasn’t doing it right and taking over as she has told me I did, but no picture of those things happening.
The fog is expanding, more events are becoming lists in my mind. I know we went to the cinema to see the latest Star Wars film, Sam has said I was adamant from the time I was released from the hospital that I would see the film. I have been to that particular theatre many times. But I have no memory of going to the theatre or the film itself. I have fragments, I know the film was essentially episode IV recast, but I can’t recall any dialogue or tell you if we had popcorn. A strange twist, I was reminded of a blog entry from February (which I don’t remember writing) in which I mentioned seeing the film. At that time I could remember the other films in the saga, yesterday I watched episode VI and did not remember the film. I know there is an episode VI and that I watched it with Emma, but the scenes and dialogue are foreign to me. I do remember her distaste for science fiction in general and certain elements of the film in particular, she had been annoyed by the phrase “younglings,” hearing it brought back the script, but not the experience.
Other redefined words may exist, but I don’t know which words they are. I had a great deal of trouble explaining to the ophthalmologist what perceptions were missing, it was as if we were speaking different languages. This event I remember, so the memory issue is fragmented, and in fact we were speaking different languages, he was speaking ophthalmologist, looking for things manifested by different tests, I was speaking English, explaining things not revealed by the tests. I had a similar issue with the otolaryngologist who is supposed to uncover the reason for my hearing loss. He is looking for an inability to hear measured tones at precise frequencies and decibels. I am experiencing interference, as if my ear was blocked. Most sounds come through with the density of bone induction.
The inability to communicate has caused a loss of confidence. I am not as sure of my thoughts, ideas, and judgements. I am not sure if I am communicating with myself in my internal exchanges. When I express my thoughts, what are those thoughts based upon? I have had a couple of conversations about morality, and I realize I am ill equipped to argue my point of view. Part of this is not my thought process, there appears to be a sector that believes the universe is defined by their personal standards, even the words “truth” and “moral” have a single meaning, the meaning they have assigned. Debate is reduced to disparagement, and thus from an educational standpoint, useless.
Part, if not all, of my cognitive therapy is designed to teach me to accept who I am today. I recognize that. Hoping to be who I was last year is as futile as hoping to be the person I was thirty years ago. I know that each day we are new, a fresh set of twenty four hours of experiences build us into altered beings. The accident was merely a new experience, a major, life-changing experience, but life is changed every moment. I have been aging since birth, this was just a rapid acceleration of the process. I never wanted to be normal before, now it is a goal.