The therapies I have participated in since my accident have attempted to bring me back to a functional state. I was never merely functional, but they need a target.
Occupational Therapy has been trying to get my elbow and wrist to function in ways conducive to performing in an occupation. My mind is a bit fuzzy (more on that later) but I do not recall being asked which occupation I should be prepared for. My last position was in a warehouse, preparing shipments of fifty pound boxes of cosmetics. Prior to that I have done many things, both as vocations and avocations. Presently I can write, but I have never made much money writing (You could buy my book if you want to help). As much praise as I receive for my progress, I am nowhere near ready to pick and ship boxes heavier than three pounds. The other day one of the therapists was saying how well I am doing, I can touch my shoulder. I told her I really wanted my arms to match, and she asked what I could do. I wasn’t in the mood to show off, but I took my left arm, extended it to perfectly straight in front of me, lifted my arm straight up, brought my palm to the back of my head, and rotated my wrist clockwise and then counterclockwise, ending each twist with the back of my hand on the back of my head. These movements were based on the extrapolated extremes of the exercises I had been doing for my right arm.
Apparently this was not the goal they had in mind, as none of the therapists could reproduce the movement.
My Physical Therapy has been trying to get me to walk smoothly, without falling. I am not progressing quite as well here, I’ve always been a little wobbly and my gait can best be described as a controlled fall. I make them nervous, they keep thinking I’ll fall, but I saw there was a wall there and managed to bounce off of it. My days of ballet, or even expressive dance, are no doubt behind me. Yoga is still on my list, I can see it as a life long physical therapy project. If I’m lucky I will find a way for medicaid to pay for it.
My Cognitive therapy is as broken as I am. I have my first evaluation next week, and my comprehensive evaluation has yet to be scheduled. Parts of my brain are healing, enough that I am aware that things are missing. The entire months of December and January are now a mystery, and November and February are not as clear as they should be. In the interim I am taking the Lumosity training, and after a month my scores are as high as the fifty seventh percentile. I am well aware my mental acuity was previously in the ninety ninth percentile for some tasks, never below the ninetieth. There are languages in which I once could speak fluently and no longer can count to ten. I know what belongs in the kitchen but can’t think of how to put it together into an interesting meal. Emotionally, I am vacant, yet for some reason I feel an attraction to a woman who I had the police remove from my house last year.
My vision issues are slowly being narrowed down to the correct ophthalmologist, and my hearing tests have resulted in a “well that’s unusual” response from my doctors.
The most satisfying therapy I have tried has been “Social Therapy.” Spending time doing the things I am accustomed to, with people I am accustomed to. I hope I am progressing well, but my friends are not therapists, they may not be telling me about my failures.
I started out slowly, catching my friend’s “British Invasion” show, a chronological performance of the music of the 60s and 70s. They even had actors doing introductory skits, the opening had a great twist on “Who’s on First” substituting The Guess Who, The Who, and Yes as the acts of a concert.
Sam and I had a nice evening discovering garlic fries and I shot some video for the band. It was a good “first night out,” not too crowded or loud, and loads of memory laden music.
The next week we returned to see my friend Buddy Cash play with his band and a couple of the guys from the band Squeeze. Buddy always packs the house, it was a busy and loud night, but it was great to see everyone again. Squeeze covered a lot of Led Zeppelin, which was an odd turn but interesting. With Buddy and two former bassists from Squeeze there was a plethora of bass players, unfortunately I didn’t shoot any video that night.
A few days later I met some friends from school I had not seen in decades.
My friend Michael Montgomery is a magician, he lives magic, always prepared for an illusion. It was amazing to watch him seamlessly flow from conversation to magic. Kati (Karena Walker) is a yoga teacher and singing bowl practitioner. I attended a healing circle Kati and another yoga teacher put together a few months ago (although in my mind it is presently a fact and not a memory), it was exceptionally soothing. We had not all been together in nearly forty years, we met at Michael’s house, met his wife Paula, and had a wonderful evening rekindling memories. This is something I must do again, I carried a smile for days.
Tonight I’ll be seeing another friend, Ritchie DeCarlo, play with one of his bands, The Prussia Kings, at a club not far from Sam’s house (fortuitous planning). Ritchie’s musical directions are always interesting, and the club carries Chimay Premiere, so the evening is promising.
My friend Tribbee returns from Scotland this week, the Vernal Equinox arrives with Sunday, April brings the Punk Rock Flea Market and Record Store Day. All of these things engage and stimulate my brain, providing much needed social therapy.
The road ahead is long and mysterious, much like my journey with multiple sclerosis I have no idea what to expect. I do know, at least I feel, I must regain my memories, exercise my brain, regain my mental acuity. I may appear to have recovered from the accident, but there remains a long, largely invisible, recovery ahead. Sam has said being with me is like being with my twin bother, we look the same and have similar characteristics, but we are not the same person.
I really want to be me again.